Anyone worked with a physical therapist for Dysautonomia?

[Sushi]

I have just started and she has experience working with Dysautonomia in quadraplegics. Of course our Dysautonomia manifests differently but she is going to try to work with the neural aspect. Seems like a possible avenue of approach--anyone had experience with this?

 

[Never Give Up]

No experience, but these might be of interest:

http://solvecfs.org/manual-therapy-in-cfs-part-1-of-2/

http://solvecfs.org/manual-therapy-in-cfs-part-2-of-2/

 

[Sushi]

No experience, but these might be of interest:
http://solvecfs.org/manual-therapy-in-cfs-part-1-of-2/
http://solvecfs.org/manual-therapy-in-cfs-part-2-of-2/

Thanks, great references!

 

[taniaaust1]

Hi sushi,

I haven't worked with a physio on this aspect but I did work with a doctor giving me the (non aerobic) exercises often used for POTS patients. It was doing certain calf and leg exercises and tighting the muscles for this. I found out though in my case these kind of exercises do not help my dysautonomia at all.

Ive also tried to be more upright and that in my case doesn't help either.. and neither does doing things like raising the head end of the bed.

 

[Sushi]

Ive also tried to be more upright and that in my case doesn't help either.. and neither does doing things like raising the head end of the bed.

The physical therapist I am seeing is not asking for things like this. Rather she is going to try to work with neural triggers.

 

[taniaaust1]

thanks sushi, I would love to hear more about this then when you've tried it.

 

[Effi]

@Sushi I haven't tried this, but am very interested to learn more about this (e.g. what you mean by 'working on neural triggers'). If you don't mind sharing

 

[Sushi]

am very interested to learn more about this (e.g. what you mean by 'working on neural triggers'). If you don't mind sharing

She was going to try to come up with a plan for the coming visits. I'll share anything that looks interesting.