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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Anyone with myasthenia trait, and/or had/having IVIG

Messages
42
I would like to be messaged by anyone in the UK who has been told they have a possible myasthenia, with their ME. And also anyone who has had a five day course of IVIG in UK hospital? Also, anyone who has the ghastly hot feeling when they get weak. Alot to ask sorry but feel very isolatd and freakish,