Discussion in 'General Treatment' started by Kenny Banya, Dec 8, 2017.
and what happened?
I haven't tried ritalin but I occasionally use modafinil. I appreciate that these work in different ways, as far as I know, but I presume the effect you're wishing to promote information on is the fatigue masking.
Apologies if this is irrelevant but I can only talk about the latter, to wit, I find that modafinil works very well on the whole giving me a boost in energy levels and sharpening up my mental state to a degree that makes me feel 'normal' to very good indeed.
I am, however, judicious in its use because firstly I sometimes experience headaches and secondly I don't want to end up over exerting leading to a crash as well as not wanting to get too reliant on a given drug which I can't guarantee the supply of. Here in the UK my doctor was very firm in advising me not to take it and I know they don't prescribe it for ME.
I'd describe myself as mild to moderate on the fatigue scale anyway so I usually manage my work ok no matter where I'm at in the cycle of peaks and troughs.
I take about 5mg around noon , it usually helps me to get something done, like the dishes or get some things organized. I can't say it has lead me into a "crash" i still work on pacing. It does seem to help with mood until it starts to wear off then i feel a bit down. I have noticed I dont seem to need as much sleep meds at nite while using the ritalin unless i have coffee.
I tried provigil, and nuvigil I liked them for a while, then i started feeling really "out of it and tired" after taking them, i am not sure why that is? I mentioned to one of my dr's and he said "well try taking the whole tablet" Ok I tired and i had the same tired effect (that was the nuvigil ) maybe i should try it with the "provigil" ? sorry for getting off topic a bit.
I got the PA last year at stanford to do an Rx for ritalin, as they were on of the providers to partake in the synergy trial. I do take the kpax vits when i take the ritalin, not sure that makes any difference or not.
that PA is no longer at stanford, and I saw the new dr there. I asked him about an Rx for the ritalin, and he said wait 2 weeks (because we are trying to increase the antivirials) and check back in.. i think the "ritalin is doping"
ok so i am doping to get my dishes done, and to be able to grocery shop and prepare food ( on good days) oh and to get through that dang junk mail.
1. It works
2. It’s some powerful schizz
3. You may have a powerful crash afterwards
Very small amounts may prove beneficial, possibly allowing one to do essential life functions one would otherwise fail; just the right amount at just the right time almost magically clears brain fog and tiredness.
My opinion is that using a standard dosage on us amounts to whipping a tired horse. You can run a horse until it dies.
Problem in Australia is getting someone willing to prescribe.
Already had one GP refuse
I have POTS and NMH in addition to CFS and I noticed that Peter Rowe recommended Ritalin as an option to consider. I have been taking the time-release version called Concerta because that's what my doctor prefers to use. I take it mostly to improve cognitive function (memory and concentration), but it also is supposed to improve vasoconstriction. It has helped me more than any other drug I have taken, but I get the sense that everyone is a little different and you really should try a lot of different options to find what works best for you.
The Synergy Trial at Stanford "evaluated the safety and efficacy of methylphenidate (generic Ritalin), combined with a mitochondrial support nutrient formula over 12 weeks".
"The difference between the two groups did not achieve statistical significance"".
maybe i should get a different multi-vit then one that is less expensive. : ) I do have hopes that it might work, the kpax and ritalin combo. I have heard some folks felt better with it.
Peter Rowe recommended Ritalin as a possibility to explore for cfs patients with POTS. The results for treating POTS have been more encouraging, as in this study.
I don't think this blurb at the end of an article needs a new thread, so I'll just tack it on here. Another mention of ADHD medications for "Chronic Fatigue Syndrome".
Since the mentioned "observational case study" isn't listed in the references, I assume it was never published. Sounds pretty wishy-washy to me.
My doctor prescribed me Ritalin after reading an article from a doctor who believes Ritalin + CBT can heal CFS. The Ritalin did help with my symptoms, but I would NOT recommend it. After 6 months my body shut down because I did way more than my body could handle (Ritalin acts like speed, you just keep going) and I became completely bedridden.
I've tried ritalin and it didn't really help. I think stimulants in CFS are generally pretty ineffective, and even if they help with fatigue, they also make you crash faster. I don't think they're worth it.
What your describing is surprisingly common, and it really underscores why its so important that we get properly diagnosed. I was prescribed Modafinil...felt great at first... and after about a month... I had a massive crash... which lowered my overall baseline. Since then... I've learned about pacing, etc... so I know why this happened. But had I known earlier... I could've prevented it.
However... that's not to say that some of us won't benefit from stimulants... but they have to be used very carefully.
You can also try a Google Site Search
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