Surprisingly good outcomes for people who get ME/CFS after Mononucleosis (Glandular Fever)
Sometimes ME/CFS emerges after mononucleosis, or glandular fever. Simon McGrath shares results from a long-term follow-up study from Haukeland University Hospital in Norway...
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Anyone seen Dr Neil Nathan in California?

Discussion in 'ME/CFS Doctors' started by farallon, Jan 28, 2013.

  1. SanDiego#1

    SanDiego#1 SanDiego#1

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    Mouse- Don't know about your area Calif? but more and more Dr. here are not taking Medicare. My husband needed hip rep surgery by our Orthopedic specialist who we have seen for years. Thank God he took medicare. * others in the practice do not anymore.

    SD
     
  2. Mouse girl

    Mouse girl

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    Oh my gosh! Thank you so much for posting that link! It's been so hard to find lists of docs, seams harder to find quality info on the internet than it was before we had it. I've seen one of the docs on the list and he is fabby. But, he's not working as much so I'm glad to have a list of other docs to check out if he becomes unavailable. Oh, thanks so much. You really made me day, I printed out the list and was honestly surprised at how many docs are around. :thumbsup: I feel so much better knowing there are some other docs I can check out if I need to that I hadn't heard of before.
     
    snowathlete likes this.
  3. Mouse girl

    Mouse girl

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    Yeah, I'm so cal. You know, that has not been my experience of the the experience of my friends and family. Medicare has been a life saver for everyone I know who has the standard plan. Some people choose the HMO kind of medicare and sure, they are going to have some restrictions since it is an HMO plan. But, most of my friends credit their health and lives improving enormously since receiving the blessing of medicare. I know for me, it was a life changer. I haven't heard of doc that doesn't take standard medicare except for docs that only take cash up front. I've found alot of docs that even take medi/medi who are Bev Hills fancy pants docs are free for me. It's pretty wonderful, I have to say. But these guys are really good guys. My oral surgeon who isn't covered since it is dentistry even took medicare/medical to do pathology though. That test would have cost $200 and would not have been covered at all under Blue Cross, it was free. I had an ultra sound that would not have been covered at all through my old Blue Cross plan, it would have cost me $1500, it was free. I would just have not been able to get the ultra sound in the past since I am impoverished due to this illness. Now, I can even afford to have biopsies or tests done that were impossible to afford before. I started paying taxes at age 9 so luckily I had paid into the system for a long time even though I got so sick at a young age.
     
  4. Tristen

    Tristen Senior Member

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    Exactly why I haven't gone to Gordon Assoc even though they are only a few hours from me. Yes, they know their stuff, but way too much dough for me. I'd keep looking and find and me/cfs or llmd doc who will take your insurance.
     
  5. globalpilot

    globalpilot Senior Member

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    How many of us haven't spent thousands of dollars otherwise though ? I know I have and I would rather pay a few thousand to get well now and stop the constant outpour.
    The $5,000 for the wave oscilator is a bit over the top though.
     
  6. globalpilot

    globalpilot Senior Member

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    I'm reading his book now. I haven't gotten to the section on medicare you referred to above. But the reason I'm so interested in him is because he is one of the few that treats biotoxins. I happen to have one of the genotypes that has difficulty detoxifiying biotoxins. I think this is very important.
     
  7. globalpilot

    globalpilot Senior Member

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    I'm sorry about your situation Caledonia and everyone else who is going through this. I have to disagree with one thing you said though and that is that a naturopath or holistic doc could do the same thing. I live in Ontario, Canada and have been seeing a very good doctor who does try his best I think. But there are certain things he is not up on that I see Dr Nathan is such as thorough viral testing and biotoxins.

    I do plan to see Dr Nathan for the first time March 18th. I will keep the board informed so that everyone can learn what treatments he is doing and if they help.
     
  8. Koivy

    Koivy

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    globalpilot, curious as to why you are travelling all this way to see Dr. Nathan when there are a bunch of docs closer to you?

    Anyhow, I would be very interested in hearing how your appt goes! Thanks!
     
  9. valentinelynx

    valentinelynx Senior Member

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    [quote="Mouse girl, post: 333033, member: 8523"... And he even wrote off the 20% that medicare doesn't cover so his visit and expensive tests were absolutely free! Even my doc who did research with the guy and got a friend discount on his bill still had to pay $500. But, little ole sick and impoverished me, free baby, free! ....[/quote]

    Sadly, if this really what happened and not a misunderstanding on your part, that doctor would be considered by the feds to be committing Medicare fraud and could be prosecuted, have his practice closed down, and fined millions of dollars. Medicare does not allow you to waive the copays; they consider that stealing from the government. This is one reason that many good docs do not take Medicare; the rules are too onerous, they keep changing, and they can be changed retroactively, so you can be in violation without knowing it.
     
  10. SanDiego#1

    SanDiego#1 SanDiego#1

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    Well I have to agree with Farallone- I have spent about $14000.00 since last June on a specialist in NC. I have gotten worse by the day. He is a big researcher and keeps giving me the same doses he gives a 175 lb man in injectables. I weigh 100 lb.His favorite quote if I ask a question or write an E-mail is "It is going to cost you". I get RX from his Compounding pharmacy that say take as prescribed. There are no directions. When I ask them --"It's going to cost you".
    The last conversation I had with him he said he had been doing this a long time and had the sickest patients of any of the Dr. I told him-Maybe that is the reason they are the sickest-They are seeing you". I found an Environmental MD here that is changing alot of the things and also-since I have had Diarrhea for 4 months-cutting down or out my Magnesium.. I am not going into my medical issues. I just have everything!!!! This is for Red- You don't get 17 years of illness cured with one $750.00 visit. There will be many more and many more $$$$$$$$$$.
    I used to live in Calif and went to college there-- I would think Dr. Nathan would have a lot of competition to charge those prices. We don't have as many ME/CFS physicians in the SE. Chiropractors here cannot prescribe drugs or vitamins. However, I can tell you this my Chiro helped my dizziness from Pots just from adjustments. Getting more books and seeing my less expensive Dr. here. Good luck .

    San Diego #1
     
  11. SanDiego#1

    SanDiego#1 SanDiego#1

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    Sadly, if this really what happened and not a misunderstanding on your part, that doctor would be considered by the feds to be committing Medicare fraud and could be prosecuted, have his practice closed down, and fined millions of dollars. Medicare does not allow you to waive the copays; they consider that stealing from the government. This is one reason that many good docs do not take Medicare; the rules are too onerous, they keep changing, and they can be changed retroactively, so you can be in violation without knowing it.[/quote]


    Val- Who are you the Medicare Police??? If the Dr. wants to do this-he is an adult and so is the patient. Why are you waving a Red Flag??

    San Diego #1
     
  12. globalpilot

    globalpilot Senior Member

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    None of the bunch of docs closer to me treat biotoxins. Do you know of any ? I've been working with one of the best in my area for several years and we've done everything he has available.
     
  13. sianrecovery

    sianrecovery Senior Member

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    Hi Fallaron

    That's disappointing, I liked his book too. But like Caledonia, I also found the chapter on why he chose not to work with certain patients had that tang of self-justifying bullshit. Some doctors are better than others, but if there's one out there that has all the answers, I have yet to hear of them.
    I just wanted to say I think you are doing a brave and difficult thing in caring for your mother. I looked after both parents when they had terminal cancer, and the final stint with my dad was kind of what brought everything to a grinding halt. It's very hard to be a carer when you are ill yourself. My brother has just been diagnosed with bilateral breast cancer, with lymph node involvement, and I am trying to grid my loins to do it again, while my body is going, as we say in the UK, 'you're having a frigging laugh aren't you?!'
    But when you're in it, you're in it, and I have never regretted anything I spent in the way of health to make sure my father had the best care, and died at home as he chose. Its four years since he died. I had many years of ill health prior to his death, but nothing like the depth of it I have experienced since. Happily, over the last year, while definitely NOT CURED I am better than I was via a variety of interventions. I wish you and your family all the love and luck and acceptance and ease and grace in the world, and hope your mother's pain is soon relieved.
     
  14. RestingInHim

    RestingInHim Realist

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    I haven't read this entire thread, but I can recommend Dr. John Chia in Torrance (LA suburb). He is on my insurance and his office handles all the billing. Though he is an infectious disease (and an ME/CFS) specialist, he only charged my insurance what my internist charges...and Dr. Chia has spent 1- 1 1/2 hours with me at appointments! I have multiple health issues....many of which he believes are due to the enteroviruses for which I tested positive.

    Here is blog of one of his patients: http://quixoticmeblog.blogspot.com/
    Here's my first article on Health Rising...2nd one will be posted this week: http://www.cortjohnson.org/blog/2013/02/23/me-and-dr-chia-chronic-fatigue-syndrome/

    He is interviewed on YouTube ME/CFS Alert channel, Episodes 38-41
    Check out threads on PR...one regarding Dr. Chia, the other is about Equilibrant. Also search PR and HR about him

    Hope this helps!
     
  15. Dreambirdie

    Dreambirdie work in progress

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    Chia sounds like a very kind and generous doctor. I know 2 other people (in my FB group), who see Chia and they give him VERY HIGH MARKS.

    He is very compassionate, and absolutely NOT a money grubber, like some of the other self-proclaimed CFS experts.
     
  16. RestingInHim

    RestingInHim Realist

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    Absolutely, Dreambirdie! He avoids expensive treatments that have been shown to do little for his patients. He and his son do their research with little or no funding. He doesn't order tests that won't effect treatment. At the highest dose, his Equilibrant is $90 per month. For the person who asked about traditional Chinese treatments, he imports ingredients for Equilibrant(an immune modulator and antiviral) from China, from sources he knows and trusts.

    I have received the most help from him than from any other doctor in 20 years of dealing with this disease!
     
    Dreambirdie likes this.
  17. Dreambirdie

    Dreambirdie work in progress

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    Great to hear! CHia sounds like one of the few rare "good ones."


     
  18. valentinelynx

    valentinelynx Senior Member

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    Val- Who are you the Medicare Police??? If the Dr. wants to do this-he is an adult and so is the patient. Why are you waving a Red Flag??

    San Diego #1[/quote]

    Just sad that it is that way. A good friend had his practice destroyed by trying to be a nice doctor. I'm not the one who posted that this doctor is doing whatever he is doing. More power to the doctor, sounds like a good guy.
     

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