1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
August 8th - What is the one thing about suffering with severe ME that the world needs to know?
Andrew Gladman brings our coverage of the Understanding & Remembrance Day for Severe ME, airing the voice of patients ...
Discuss the article on the Forums.

Anyone seen Dr Neil Nathan in California?

Discussion in 'ME/CFS Doctors' started by farallon, Jan 28, 2013.

  1. farallon

    farallon

    Messages:
    13
    Likes:
    5
    He gets rave reviews all over the net and I know he is an MTHFR, Lyme and mold expert. Actually, he is supposed to be great in all autoimmune like stuff. However, the medical practice he practices at got mediocre reviews. They said they are extremely expensive, charge you full appointment cost when you have a question about something you are going through while treating with them, staff got bad reviews and takes weeks to get return calls. I would love to treat with Dr. Nathan, but we are not rich people. He has an amazing reputation. Anyone know about him?
  2. farallon

    farallon

    Messages:
    13
    Likes:
    5
    Never mind. I just gotta reply from them stating the initial consult with him is $750 for 90 min.! I'm sorry, I don't care how good you are, these kinds of rates are shameful! People should not have to be rich in order to get quality treatment. I am so beyond frustrated right now!
    garcia and sianrecovery like this.
  3. Adster

    Adster Senior Member

    Messages:
    554
    Likes:
    216
    Australia
    Cripes, that's serious money. Disappointing.
    Linda likes this.
  4. Red04

    Red04 Senior Member

    Messages:
    178
    Likes:
    75
    Just wait on obama care to come in to play. Then we will all get quality treatment for FREE! After 2 years of going to some of the very best doctors in Houston, it became evident to me that this would need to be tackled outside of traditional care.

    I think your best bet is to find a general practitioner or chiropractor that will run any tests you want and let you "educate them" or tackle MTHFR completely on your own. There just aren't that many doctors that know about it and treat it with supplements. This was my experience 2 years ago. Even the doctors that knew about it, just know enough to be dangerous. They can prematurely rule out MTHFR with outdated testing. Or prescribe glutathione injections (bad idea). However, it is certainly catching on so you may have more luck finding a good doctor.

    It's not super easy to figure all this stuff out, but it is possible. It takes hours and hours of reading. But, you don't have many options and the forums are here to help you answer any questions. And the supplements are all relatively affordable.

    Watch these videos: http://www.methyl-life.com/a-doctor-explains.html

    Watch Rich's videos.

    And read the stickies at the top of the page about Freddd and Rich's protocols.

    There is a methylation panel you can have run and some genetic testing as well. I assume a good doctor would run those tests and put you on a protocol of supplements similar to Freddd or Rich's.
  5. place

    place Be Strong!

    Messages:
    280
    Likes:
    54
    US
    Red is right as rain!
  6. farallon

    farallon

    Messages:
    13
    Likes:
    5
    Thanks everyone. The problem is, as I explained above, I have a very complicated health situation with gobs of other health issues. The one thing I have learned is that all this stuff is interconnected and for people like me with multiple health issues, it's not just a matter of taking a standard MTHFR protocol and be ok. I have to take other things into consideration like my AF (which is horrendous right now), lyme, candida, hormone imbalances and all the other problems I have. Some say that doing MTHFR protocols first can make other issues worse and others say vice versa. I research all the time. They call me "Dr." (my name) as a joke in my family, because I know so much about medical stuff. But one thing is for certain, despite the stuff I do know, I cannot do MTHFR treatment on my own. I think that would be very foolish. If it was my only issue, than that would be a different situation altogether. Thanks.
  7. place

    place Be Strong!

    Messages:
    280
    Likes:
    54
    US
    I have some of the same issues as you plus allergies and chronic sinus issues, see my other posts. It's all connected. I went through the process, and now my food, macs and other sensitives went away. It also got ride of ic. Only thing left is sinus infections. And sleep is still a little funky. Also as a side note.... I have four highly rated embbies on ice. You can do it! Just ask questions here and people will help you through.
  8. snowathlete

    snowathlete

    Messages:
    2,017
    Likes:
    2,054
    UK
    Farallon, i feel for you. It's particularly hard if you have other medical stuff to consider as well. That is a lot of money. Is all you get for it the consultation?
    Where are you based? A number of ME docs know at least something about MTHFR now so maybe there is another you could see instead?
  9. farallon

    farallon

    Messages:
    13
    Likes:
    5
    Snowathlete, I live in So. calif.
  10. snowathlete

    snowathlete

    Messages:
    2,017
    Likes:
    2,054
    UK
    I can't vouch for any of these docs but here is a list of ME CFS Fibro docs in California. Might give you somewhere to start so you can look into some of them, and see if any look likely or not.
    http://www.co-cure.org/USA_CA.htm
  11. Red04

    Red04 Senior Member

    Messages:
    178
    Likes:
    75
    Everyone here has complicated health issues. Crazy lists of symptoms. You know your body better than any doctor. You need to forget some of what you know and relearn methylation/mthfr. You and all the doctors would be amazed at what gets cured with a methylation protocol.

    In addition $750 to get 17 years of illness cured seems pretty reasonable if you are that worried about going at it alone. When I had nowhere to turn before finding freddd, I was looking at sending my wife all over the country for $10,000+ and we were fresh out of college. I was looking at selling one of our cars, etc.... There is no amount of money that is worth having CFS over. I don't know your financial situation, but I would look at eliminating basic services like cable, Cell phone. Etc... If I thought a couple thousand to dr Neil would cure me.
    SanDiego#1 likes this.
  12. caledonia

    caledonia

    Messages:
    2,717
    Likes:
    1,310
    Cincinnati, OH, USA
    After trying all kinds of doctors (and getting screwed up in the process), I'm now doing what Red is doing - consulting with "Dr. Caledonia" (me). Nobody knows my body like me.

    I have identified a local Yasko practitioner I can consult with in case I get stuck, but I don't think I'm going to need her.

    Basically everything that Red said. You can do this.
    Dreambirdie and snowathlete like this.
  13. caremom

    caremom

    Messages:
    35
    Likes:
    4
    Australia
    Would love to hear your experience on his treatment.
  14. caledonia

    caledonia

    Messages:
    2,717
    Likes:
    1,310
    Cincinnati, OH, USA
    Dr. Nathan wrote a book. I thought it was a pretty good book, until I got to the chapter on why he doesn't take Medicare. Apparently there are a certain number of patients who go from doctor to doctor (all the high priced famous ones) trying this and that, and they never get better. Then he blames the patient for not getting better. Not like the doctor doesn't understand the disease.

    I was pretty offended and put off by this. I'm on Medicare and wouldn't have the money to see him or any other famous expensive doctor. I really have no idea what he's talking about, other than it's the old blame the patient for not wanting to get well.

    So personally, even if I lived 10 minutes from him and could afford his rates, I doubt if I would go to see him. I suspect, Dr. Caledonia knows more about methylation than he does. All he did was do a trial of Rich's Simplified Methylation Protocol, and prior to that he was treating ME/CFS patients with Teitelbaum's Protocol.
    sianrecovery likes this.
  15. Dreambirdie

    Dreambirdie work in progress

    Messages:
    4,958
    Likes:
    3,010
    N. California
    I agree. It is shameful. That is a ridiculously huge price, and no one is worth that amount of money per 90 minutes.

    I agree with Red as well. Most will doctors need 5-10 more years working with these issues before they will be qualified enough to give smart advice. In the mean time, we are on our own.
  16. Red04

    Red04 Senior Member

    Messages:
    178
    Likes:
    75
    I cannot express how much I disagree with this. What is shameful is the rest of the doctors not helping people and billing insurance companies. Would you rather your insurance pay a doctor to $300 to prescribe prozac and lyrica for the rest of your life or $750 and get cured. He has support staff, an office, etc.... You don't know what goes into that 90 minutes. How much has he spent to treat you? I spent tens of thousands on doctors not getting an answer and the insurance companies probably matched another untold thousands of dollars. That is shameful.

    Medical care is expensive and Dr. Neil Nathan should be commended for his desire to look beyond prescribing drugs and actually looking to treat the cause of a chronic condition. We finally are getting doctors who are working in methylation/MTHFR. Let them make there money. Promote the cause. Thank them. Let the market set itself. You see where the controlled medical market gets us. It is short sighted to condemn him for charging $750. In the late 70's VCRs were $1000. Now look where we are.
    kgg12003 likes this.
  17. anniekim

    anniekim Senior Member

    Messages:
    584
    Likes:
    183
    U.K
    $750 if it cures you is of course not a lot; however, there is no guarantee it will and it all adds up when a person tries treatment after treatment with few gains..
    garcia, Marianarchy and Dreambirdie like this.
  18. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

    Messages:
    2,323
    Likes:
    1,652
    Midwest, USA
    Even if he were to cure you, it would take a lot more than one appointment. The return appointments may cost less than the initial appointment. The reviews say that he charges for a full appointment to answer a question. At that rate it could really add up. There is not point in starting if you don’t think you will have the money to finish.
    garcia and Marianarchy like this.
  19. Red04

    Red04 Senior Member

    Messages:
    178
    Likes:
    75
    I understand his prices aren't ideal and some people won't be able to afford him. Or choose not to use him. But if the guy wants to charge a price to provide a service than so be it. If we were to force him to charge a certain amount, he could go back to being like every other doctor and spend 4 minutes with you and up your Prozac and Xanax and lyrica.

    All I'm saying is we need to be careful who we are criticizing here. Who is the good guy? Who is actually helping people? Who is just working the insurance system and not healing people?

    Its not like the guy is charging $50,000. I bet these same people who think he's expensive have spent more on there iphone and iPhone bill over the last few years than he would charge for 5-10 appointments. iPhone 200. Plus 100/month. For three years is about $3800. Shameful. How much is a semester of college? $5000? An average crew car is 30,0000. Maybe I'm crazy, but I would have paid double that if he was in Houston when my wife was still ill. I probably would have flown to CA and paid 750 if he was around then.
    DREBS likes this.
  20. Marianarchy

    Marianarchy

    Messages:
    40
    Likes:
    27
    I have a friend who saw Dr. Nathan for a year and spent several thousand dollars on office visits, testing, supplements sold by their practice and a $5000 Multiple Wave Oscillator he recommended. She failed to improve. At all. I agree that $750 is not much to pay to get well, but there is a very real possibility of spending a huge amount of money and not feeling any better at all.

    Early on in my friend's treatment, I considered going to Dr. Nathan. After speaking with their office, it was apparent that this practice specialized in treating affluent patients with very deep pockets. I myself, would prefer to "self treat" until I could find a doc who truly cares for every patient. Even the uninsured, unemployed people who are desperate to get well.
    garcia likes this.

See more popular forum discussions.

Share This Page