1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Knitting Equals Pleasure, Despite ME/CFS
Jody Smith loves knitting. Again. She thought her days of knitting and purling were long over but ... she's back ...
Discuss the article on the Forums.

Anyone see success from FODMAP/Frucmal diet? Or not? I'm starting it

Discussion in 'The Gut: De Meirleir & Maes; H2S; Leaky Gut' started by CAcfs, Jan 31, 2012.

  1. CAcfs

    CAcfs Senior Member

    Messages:
    178
    Likes:
    92
    Basically, the week I had my big crash, I remember I was at an overnight camp, and I had this big bag of carmel candies/tootsie rolls in my room. That week, I really crashed and never recovered (mono-like). The other strange thing is that my body odor started suddenly smelling very.....fermented!

    I was always thinking maybe I caught a pathogen, or maybe it was just candida going nuts in response to sugar, but now I'm starting to think it was WHAT I was eating, exactly. And I have realized that what I am eating NOW, still, may be keeping me sick.

    For example, I did a pretty good "clean" diet, free of most allegans, but I realize that during that time, I was putting honey in my oats every morning. That was really the only sugar I was consuming, that and occasional berries, but still.....honey's full of fructose.

    Going gluten free has helped some, but after drinking my coffee, I start to feel VERY drowsy, in a weird, narcoleptic way (not an adrenal crash way). And guess what? I use coconut milk in it. I just realized that coconut milk is a no-no on the FODMAP diet.

    Here is a great breakdown, with charts, for those interested: http://www.practicalgastro.com/pdf/August07/Aug07BarrettArticle.pdf

    Here is an even SIMPLER breakdown: http://ibs.about.com/gi/o.htm?zi=1/...bsgroup.org/brochures/fodmap-intolerances.pdf


    I am just wondering who else has seen success doing this? Or did it not pan out for you? Who has decided to try it then stuck with it?


    The biggest challenge is going to be my sublingual B supplements.....most of those contain sugar alcohols.

    I am concerned about corn ingredients in some of my supplements. I guess that's okay? Or no? I see that corn syrup is bad, even the non-HFCS type, but I don't know about corn derivatives in supps. I may have to cut those out. Also, I'm not sure if I can eat corn tortillas and corn chips?
  2. CAcfs

    CAcfs Senior Member

    Messages:
    178
    Likes:
    92
    I have another question....if anyone can help:

    -Rice milk has 10 grams of sugar, even though none is added. Is that much sugar okay in beginning? Even if it is acceptable sugar. I am guessing answer if that it's okay.

    -Anyone have ideas for a safe protein bar? Like if it has 15 or 20 grams of sucrose, combined with a protein, is that okay?
  3. Tony

    Tony Still working on it all..

    Messages:
    359
    Likes:
    39
    Melbourne, Australia
    According to my dietitian, rice milk is generally fine for a low fructose diet though you will want to check what's in it. The low fructose diet is generally for people who have fructose malabsorption which is quite common in ME/CFS.
    The idea is to eat low fructose, so you don't need to try and eliminate all sugars or you'll end up with little left to eat...:) Good to see you found the Barrett/Gibson study.
    In another study by Shepherd & Gibson "Fructose malabsorption and symptoms of irritable bowel syndrome: guidelines for effective dietary management" you'll see that they suggest eating "sugar" foods like fruit with other things like meats, fish, nuts etc. Worth a quick google, it will come up quickly.

    I would think that the protein bars are ok with that amount of sucrose, just eating them occasionally.

    To answer your question, I've definitely had some improvement with this diet, mainly in reduced brainfog and eliminating bloating after meals. Hope you find it good for you..:)
  4. alexa

    alexa

    Messages:
    57
    Likes:
    24
    i am interested in this diet, the list of allowed food does not include any protein, i am assuming this is cause all proteins are ok (no sugars..) i have no clue if i am fructose intolerant but i have found that chaning my diet does wonders for mu CFS, i now eat a very low gi diet, but i am always confused about dairy, sometimes it seems to work with me and othertimes i get a stange headache and a spacey feeling..
  5. CAcfs

    CAcfs Senior Member

    Messages:
    178
    Likes:
    92
    Thanks for the replies. Alexa, as far as I can tell, meats are okay, as long as you don't have a different sensitivity that's totally separate from these FRUCMAL/FODMAP issues. Same with eggs. From what I'm seeing, soy as protein can be a problem, because it's a bean, and beans contain FODMAPs. So it's probably okay in trace amounts, but I'm not sure if tofu would be okay. That said, I eat Clif bars right now, which contain soy as a main ingredient, along with oats.....haven't figured out if I should be, if the amount of soy is okay. I am not hardcore on the FODMAP diet at this time. It seems as though beans would be bad, which saddens me, because it's cheap protein that I enjoy.

    I have found with dairy, that I am okay to a point. I can tell when I've crossed the line, because I get a pain around my ileal cecal valve. I can eat cheese in small amounts, but once I eat too much, I can tell. It seems to be the same with gluten, but I can only allow even SMALLER amounts before having problems, so I can't even have a bite of pasta...just trace amounts, like a dusting of gluten-containing something.

    I am thinking that one of those hydrogen breath tests would let me know if I need to be avoiding fructose, etc.....just too disillusioned with doctors right now to schedule an appointment. Then there's the matter that with FODMAPs, it's not JUST the fructose, but the other parts of the acronym, so maybe the fructose would actually be better for me than some of the other substances?

    I am also investigating that it could simply be a corn sensitivity. I still haven't figured it all out. SOMETHING is giving me bad body odor, after eating certain meals. Trying to sort it all out. Right now FODMAPs seems most likely for my fermented-smelling, strong body odor. But haven't proven it yet, because my discipline waxes and wanes, because of having a hard time cutting out what I need to due to the fatigue (vicious cycle, I know).

    My cod liver oil was flavored with citrus extracts, and that caused issues. Also, fruit juice sometimes seems to trigger the smelly pits. So I'm like 70% sure it's FODMAPs. It would explain why I can eat SOME gluten and dairy, but not tons.
  6. CAcfs

    CAcfs Senior Member

    Messages:
    178
    Likes:
    92
    Tony,

    Do you know if with the FODMAPs diet, if corn chips and corn tortillas are okay? (obviously without weird additives) If those foods are a problem, I'm wondering if the additives in supplements that use corn are okay?

    I know high fructose corn syrup is bad, but I'm still not clear if corn itself is. Thank you!
  7. Adster

    Adster Senior Member

    Messages:
    554
    Likes:
    217
    Australia
    Pretty sure there is lots of fructose in corn chips and tortillas, unfortunately.
  8. Tony

    Tony Still working on it all..

    Messages:
    359
    Likes:
    39
    Melbourne, Australia
    Hi CAcfs,

    Sorry, I've got no idea! I don't eat either. In the study I mentioned above they say that corn flour, corn flakes and corn crispbread are fine. So my guess is corn is ok but perhaps not some of the commercially produced foods containing corn.

See more popular forum discussions.

Share This Page