Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
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Anyone in the Boston area know of a good specialist..

Discussion in 'ME/CFS Doctors' started by kelly8, Sep 11, 2017.

  1. kelly8

    kelly8

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    Hi
    I'm looking for either a primary care or specialist that has helped get to a diagnosis. I've run into a lot of brick walls here and I'm hoping to find an open minded physician.
    Thank you!
    Kelly
     
    Never Give Up likes this.
  2. *GG*

    *GG* Senior Member

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    Concord, NH
    Dr Wolf in Gloucester, MA diagnosed me, not sure of his 1st name. That was 14 years ago, he was the 2nd infectious disease Dr I saw.

    Looking online it appears his 1st name would be Lucas or John. I got a diagnosis, but he offered no Treatment except taking NSAIDS. LOL I do still take them for pain and when I exercise, because I am sure that doing exercise increase my inflammation!

    My illness started with Mono. FYI

    Have you tried contacting MA CFIDS? https://www.masscfids.org/services

    From the Website:

    "We at the Massachusetts CFIDS/ME & FM Association understand just how difficult this situation can be. We offer several types of support services.

    We can:

    • Assist with patient referrals to healthcare providers
    • Give guidance on disability process and issues—please see the Disability Handbook available on our website
    • Provide information about active support groups or other sources of supportContact Us form or call our Information Line. "

    GG

    Edit: Not sure he even still Practices, but perhaps if both are still in business, call both offices and see if the Dr ever gives the diagnosis!
     
    Last edited: Sep 11, 2017
    Shoshana, Gemini and Never Give Up like this.
  3. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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  4. kelly8

    kelly8

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    Bless you for this @*GG* !
     
  5. Daffodil

    Daffodil Senior Member

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    Isnt anthony kamaroff in boston? not sure if he sees patients anymore
     
    Never Give Up likes this.
  6. Learner1

    Learner1 Professional Patient

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    He's not a ME/CFS doctor but he is dedicated to fixing patients left out in the cold by conventional medicine. A family member with a complex situation got excellent care from him - Alex Bingham MD at the Rothfeld Center in Waltham. I'm sure he's be willing to pursue any diagnostics or treatment you feel you need.
     
    JT1024, Never Give Up and *GG* like this.
  7. kelly8

    kelly8

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    I just sent my Dr a request to see if he is seeing patients. Thank you for this. If so he practices at the same hospital that my MCAS Dr does so that would be amazing!
     
    Never Give Up likes this.
  8. kelly8

    kelly8

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    Thank you @Learner1 . I did look into him. Unfortunately, the last time I checked it was 650 for the first appt with him. I've heard wonderful things about him but we just don't have that kind of extra money. And that didn't include any lab work or supplements :cry:. I've been keeping his info in my planner though and if I can't find a conventional Dr we may have to credit card it up. :nervous:
     
  9. kelly8

    kelly8

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    For those interested... Dr Anthony komaroff is no longer seeing patients. He is listed as research only according to my Dr. ( I was trying to get a referral..)
     
  10. JT1024

    JT1024 Senior Member

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    Massachusetts
    Dr. W. Alex Bingham in Waltham is wonderful!
     

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