The 12th Invest in ME Conference, Part 1
Over the Hills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London.
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Anyone had experience with the optimum health clinic UK?

Discussion in 'ME/CFS Doctors' started by slysaint, Oct 24, 2015.

  1. slysaint

    slysaint Senior Member

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    I signed up to this clinic online and have received a load of literature and they regularly send videos and newsletters. Just watched the latest one on 'tired and wired'.
    Wondered if anyone else has heard of it/used it?
     
  2. John Mac

    John Mac Senior Member

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    Typical psycho BS.
    90 day psychology program in which they retrain the brain from damaging negative thoughts.
    Alex & Anna who run the course both claim to have cured themselves of ME, which is a great selling tactic used by everyone trying to con money out of sick people.
     
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  3. sarah darwins

    sarah darwins I told you I was ill

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    I got a bunch of stuff from them in the mail, dvd included. Turned out my mother had requested it for me (she was only trying to help). This was before I joined PR, before I started learning what's behind all the BPS stuff and the history of the psych annexing of me/cfs. But even then, I read through some of the literature and thought "this is ridiculous". I binned it.

    Other views are available. And some people do say they get benefit from this kind of thing. But their comments about me/cfs seemed so at odds with my entire experience of illness (which included total denial of being ill for some years and a fiercely positive outlook) that I have no use for it whatsoever.
     
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  4. RosieBee

    RosieBee Senior Member

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    I regret wasting my very slender resources going to the Optimum Health Clinic. I did speak on the phone with them about my previous experiences and understanding of ways to treat ME to make sure they would not be covering old ground, so I was disappointed to find it was an expensive form of reframing and EFT. Some people who had absolutely no knowledge of these ways of self-help or of nutrition (if they paid for that service) may have learned something new, but for me it was a big waste of money.
     
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  5. sarah darwins

    sarah darwins I told you I was ill

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  6. slysaint

    slysaint Senior Member

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    Thank everyone. I did try a search but didn't do the titles only; explains why I couldnt find it.
    To be honest I only briefly looked thro their lit., saw the prices ,and left it at that.
    I have quite a backlog of their video links sent via email that I havent got around to watching. I can delete them now:)
     
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  7. slysaint

    slysaint Senior Member

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    Just got a newsletter from OHC, saying they were one of 10 organisations featured as an example of outstanding practice in the healthcare edition of the 2014/15 Parliamentary review.
    They are trying to raise funds to 'develop an evidence base strong enough to make a powerful and irrefutable case for NHS funding for the OHC approach'.
    It goes on to say 'As a key step towards this, we have partnered with the University of Surrey to carry out a full clinical trial, the largest of its kind by any ME/CFS clinic in the UK'.
    Be interesting to see what the trial entails.
     
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  8. Esther12

    Esther12 Senior Member

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    It's sad that, by the appalling standards of ME/CFS care in the UK, they might not even be that bad (if cost is irrelevant).

    No idea what this is about though: "one of 10 organisations featured as an example of outstanding practice in the healthcare edition of the 2014/15 Parliamentary review"
     
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  9. sarah darwins

    sarah darwins I told you I was ill

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    and @esther

    Oh, lordy. I think I see what that is. From the OHC's website:

    "As a follow on to a prospective preliminary study published in the BMJ Open in 2012, the team have recently started a three year collaboration with University of Surrey to complete a randomised controlled trial on the OHC approach."

    And I think the 2012 'study' would be this one, authored by Sharpe et al ... http://aura.abdn.ac.uk/bitstream/2164/2813/1/BMJ_Open_2012_Burton_.pdf

    Full of guff about MUS (writing about this as though it's a well-established medical term rather than something psychologists made up last week) and 'demonstrating' that you can find an 'improvement' in vaguely defined non-diagnoses grouped together on psychological whim by, um, waiting a while and then running a questionnaire along the lines of "Do you think that helped?", to which most people are too polite to say "no, total waste of time".
     
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  10. sarah darwins

    sarah darwins I told you I was ill

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    I don't think it's been published yet, Esther, but this could be extremely bad news. Sounds like they have advance knowledge of what's going in there.

    Here's last year's edition as an indicator: http://www.youblisher.com/p/991401-The-Parliamentary-Review-Healthcare-Edition/

    So, if they're featured as an "example of outstanding practice" it's a huge feather in their cap.

    Looking harder at their website, they've really got this sorted (as a self-sustaining funding and persuasion tool). They're a registered charity, but inextricably linked to certain figures well-known on these pages. They clearly do make a profit but the revenue raised is funnelled directly into "research" of the kind I linked in the previous post.

    You can see what an easy sell this is to the politicians. "All the money we make goes into research".

    It's a perfect set-up, isn't it. Carry out revenue raising junk 'therapy', funnel the proceeds back into 'research' which starts from the same assumptions as the therapy, trumpet the results as demonstrating the worth of the therapy, then push out more therapy and create more jobs for the boys and girls in the same school of thought.

    From their website, it's clear what the OHC want:

    Considering the involvement and Sharpe and co in validating this stuff, I wonder if we're not paying so much attention to PACE that we're taking our eye off the ball here. Looks to me like the OHC is a sort of siege engine for getting bps ideas about MUS formally integrated into all aspects of the NHS nationwide. And in generating their own, self-fulfilling "research" base, you just know they'll have no trouble selling it to the politicians. If they've already persuaded the Department of Health that they're an example of "outstanding practice", they're most of the way there already.

    Where are they heading?

    (from their own website)

    Yes, they're aiming to go national and government funded. Oh, goody.
     
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  11. Esther12

    Esther12 Senior Member

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    Thanks for the info.

    Also - the people running it still get a healthy salary.
     
  12. sarah darwins

    sarah darwins I told you I was ill

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    @Valentijn @Sasha - hope you don't mind my tagging you. Thought you might be interested in slysaint's post #7 above. Is it worth a post on its own? Or just keep an eye until that review gets published? I find all this quite alarming (here's an example of the sort of course they produce: http://www.secretstorecovery.com )
     
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  13. Valentijn

    Valentijn Activity Level: 3

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    I don't think OHC is a major threat. From what I recall, they get a bit too far into what mainstream practitioners would consider a bit quackish (emphasizing nutrition in disease, etc). There's probably hundreds of clinics like that which include chronic fatigue in the huge list of things which they supposedly cure.

    I think staying focused on PACE/QMUL, NICE, NIH/CDC, NHS, etc is a lot more useful, unless someone has a lot of spare time or particular interest in analyzing the OHC crap. OHC is small time quackery, and not aggressive or far-reaching.
     
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  14. sarah darwins

    sarah darwins I told you I was ill

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    I hope you're right. it's just when I see them partnered with the Uni of Surrey and getting validated by studies run by Sharpe etc, I get concerned. And that parliamentary review is a big deal. I'm astonished in if they're actually going to be in it, but stranger things have happened.
     
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  15. Esther12

    Esther12 Senior Member

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    I don't think that the Sharpe study is the OHC one.
     
  16. Sidereal

    Sidereal Senior Member

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    It's not. It's this one: http://www.ncbi.nlm.nih.gov/pubmed/23166120

    University of Surrey rings a bell. I think this woman's PhD in health psychology was from that uni. A while ago she was meant to be speaking at some US government ME/CFS thing but a few of us had a look at her PhD here on Phoenix Rising and she disappeared from the list of speakers.
     
  17. worldbackwards

    worldbackwards A unique snowflake

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    These results may be viewed with caution as it was designed to tell us what we wanted to hear and was generally shite.
     
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  18. sarah darwins

    sarah darwins I told you I was ill

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    Apologies if I got that wrong. Honest mistake.
     
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  19. sarah darwins

    sarah darwins I told you I was ill

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    Turns out the 2014/15 Review has been published: http://www.youblisher.com/p/1217431-TPR-2015-Healthcare/

    I'm not going to read the whole thing, but flipping through it I can't se any mention of them. Am I looking at the wrong thing?

    slysaint - did their newsletter say any more? Be interesting to see a screenshot of that or something.
     
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  20. Esther12

    Esther12 Senior Member

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    I couldn't find anything with a range of search terms, including 'optimum', 'outstanding', 'howard' and 'arroll'.
     
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