1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
ME/CFS: In Free Fall Through the Looking Glass
Jody Smith continues to try to put into words the horror of the altered state that hobbles the brains of those with ME/CFS...
Discuss the article on the Forums.

Anyone get swollen legs?

Discussion in 'Autonomic, Cardiovascular, and Respiratory' started by maryb, Aug 31, 2012.

  1. Sherlock

    Sherlock bicarb for exercise recovery and taming candida

    Messages:
    694
    Likes:
    237
    US
    Mary: I once tried the 4" elevation just to see if it helped lung congestion. It didn't help for that, but it's so unnoticeable that I forgot it was there for the past two months :eek:
  2. maryb

    maryb iherb code TAK122

    Messages:
    2,741
    Likes:
    1,772
    UK
    No I don't, haven't had any echos , but it did cross my mind it could be heart related, hey hum, we'll see what the blood tests come back with and if nothing will push for heart check definitely.
  3. Sushi

    Sushi Moderator and Senior Member Albuquerque

    Messages:
    6,601
    Likes:
    5,391
    Albuquerque
    Just want to say that even if you did have one or more prolapsed heart valves, this is not serious unless it is extreme. About 20% of the population has a mitral valve prolapse and most never know it. Another way it can be detected is a "click" when a "good" doctor listens to your heart.

    A certain percentage of patients with a mitral valve prolapse have autonomic nervous system symptoms, and this is much more of a problem than the prolapsed valve itself.

    Sushi
  4. Shell

    Shell Senior Member

    Messages:
    477
    Likes:
    612
    England
    I get swollen ankles, feet and the back of my legs (weirdly). I assume it's POTS for me and I do have "changes on the EEG" and symptoms of heart failure so I assume it's that for me.
    I've just started taking Q10 with magnesium to see if it helps.
  5. maryb

    maryb iherb code TAK122

    Messages:
    2,741
    Likes:
    1,772
    UK
    Thanks that makes me feel a bit better Sushi - I do have ANS symptoms as well, now what I need is a GOOD doctor:) I suppose this is where we need an ME doc who is also a heart specialist, is there such a thing?

    Yes Shell , changes on the EEG - I got told there was something not quite right a few years ago but they weren't too worried - okay probably cos its not their heart.............
  6. maryb

    maryb iherb code TAK122

    Messages:
    2,741
    Likes:
    1,772
    UK
    Well Sherlock not only are you a good detective but your suggestion of raising the end of the bed seems to have worked (a little) okay its early day but my legs seem to be a bit less swollen, so I'll give it a few weeks fingers crossed. Now if only you looked like Benedict Cumberbatch:)............................
  7. Tito

    Tito Senior Member

    Messages:
    286
    Likes:
    379
    In order to have an accurate assessment, why not measuring your legs circumference at 2-3 places, so that you'll know for sure how much and when during the day your legs are swollen. You can for example use a mole/birthmark/scar as the place where the measurement is made. You then have consistent values.
  8. maryb

    maryb iherb code TAK122

    Messages:
    2,741
    Likes:
    1,772
    UK
    Tito I don't think I need to measure - I can see the outline of my calf muscle which I couldn't see a couple of days ago, (in fact can't remember when I last could) beside we only have those metal measuring tapes used by builders, not to be recommended. Thanks for you suggestion however, I'm feeling really please today about it, even though I'm no nearer the cause.
  9. Sherlock

    Sherlock bicarb for exercise recovery and taming candida

    Messages:
    694
    Likes:
    237
    US
    Thanks for posting the outcome. I'll tell Benedict Cumberbatch that you said 'hi' :)

See more popular forum discussions.

Share This Page