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Anyone feel a little better at night?

Discussion in 'General ME/CFS Discussion' started by SmokinJoeFraz93, Sep 14, 2017.

  1. SmokinJoeFraz93

    SmokinJoeFraz93

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    Lately I’ve realised that at night I somewhat feel a little better than what I did throughout the entire daytime. My neurological fatigue has improved and I just feel in general, a little better.

    Anyone else have this?
     
  2. Alvin2

    Alvin2 If humans were rational...

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    Yeah, i find the same, noticeably better but not better enough to do much
     
  3. Wonko

    Wonko Senior Member

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    The other side.
    Yes and no, for years I had an hour or so late night (11PM ish) when my brain worked a lot better and I was physically a little more capable. I'm not sure I actually felt better, in fact I'd say not, that was the time I would notice I'd been in pain forever etc. - but it was the time I got things done.

    Doesn't happen so much these days, generally I'm wiped out before my brain would pick up and that stops it dead. the closest I get is the period a few hours after taking opiates, largely background pain free, but still a fair amount of surface pain if I have the audacity to move, and of course neuropathic pain which opiates don't touch, but I sometimes feel okay, wiped but okay, for a while, if I've taken the right amount.

    Of course they stop me sleeping, and being able to get to sleep is the reason I take them, so...not a total win.
     
    belize44 likes this.
  4. Mij

    Mij Senior Member

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    The difference for me is quite remarkable. I start to 'pick up' after 5pm
     
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  5. Orla

    Orla Senior Member

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    Yes, sometimes I can be wiped all day but pick up at 11pm or thereabouts. It is weird. Often my best time for concetrating on this is between about 11pm and 1am. It is a bit annoying though as I would rather I was winding down then.
     
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  6. TiredSam

    TiredSam The wise nematode hibernates

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    Absolutely. The later in the day it is, the better I feel. Night time is the right time.
     
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  7. Mij

    Mij Senior Member

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  8. Sandman00747

    Sandman00747 Senior Member

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    I always feel so much better at night. I can almost feel normal, not quite, but much better. However, upon awakening each morning I can't begin to put into words how incredibly badly I feel. It's almost so bad I can't make it up but somehow I always do and wonder how I could have felt so much better before sleeping for 4-5 hours. That's the most sleep I can ever get which I know is pathetic. Yes, give me the night time anytime!
     
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  9. Murph

    Murph :)

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    I had my suspicions but it wasn't til I kept a diary of symptom strength that broke the day down into 3 parts (morning, arvo, night) that I could see the strength of the association. Night is best. Afternoon worst.
     
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  10. Daffodil

    Daffodil Senior Member

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    I have always felt better in the evenings
     
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  11. belize44

    belize44 Senior Member

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    Yes, by the time evening rolls around I feel more alert and a bit more energetic. I used to do my best writing between the hours of 12 and 3 am.
     
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  12. TigerLilea

    TigerLilea Senior Member

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    No. As the day progresses, I get progressively more exhausted.
     
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  13. Diwi9

    Diwi9 Senior Member

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    Yes, even during my worst crashes, I experienced some reprieve in the evenings. However, as my condition worsened over time, the later in the day that the moment of grace prevailed (started at 11:00 am, then moved to 1:00 pm, then 3/4 pm...the latest was 5/6 pm). Now that I'm better, I have a rough hour or two upon waking in the morning (tired and with some brain fog), and am pretty much good to go after that.
     
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  14. Alvin2

    Alvin2 If humans were rational...

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    Something i just realized, i get very thirsty in the evenings when i want to drink the least so i can sleep the whole night
     
    Orla likes this.
  15. dannybex

    dannybex Senior Member

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    It would be great to do a poll on this. I have a feeling a majority feel better later in the day or at night. In our local support group there are about 25-30 members, and in past meetings I would say 3/4 felt "better" after 5pm or so, myself included (here, up at 1:35am).
     
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  16. PeterPositive

    PeterPositive Senior Member

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    Yes indeed. After 9pm especially. It seems like my adrenals wake up at 7-8pm.
    Best booster ever is a having the flu (without high fever) after 9pm. I can almost feel semi-normal with that combo.
     
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  17. erin

    erin Senior Member

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    Definitely better after 5pm until 10 - 11'ish pm after that I have to go to bed, midnight is latest . I can't stay asleep most of the time.
     
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  18. NelliePledge

    NelliePledge plodder

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    Yes. Early Mornings are absolutely my worst time. From around 10.30 fog/pain reduces. Physical energy starts to be there usually a bit later around lunchtime. Physical energy best 2-6. But I feel most alert mentally in the evening. And I struggle to sleep before 1.30/2 unless I'm sleep deprived from being awake most of the previous night...........
     
    Jessie 107 likes this.
  19. Marky90

    Marky90 Science breeds knowledge, opinion breeds ignorance

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    Yep! Morning is usually in the middle, then mid-day the worst. As the evening comes on I start weight lifting and embarking on 60 km runs

    No, but I do feel less shit like the others here
     
    TiredSam likes this.
  20. snowathlete

    snowathlete

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    Yes, I function better in the evening now. It is one of the reasons I think why I struggle with my sleep cycle because I am always tempted to stay up late as I have a clearer head rather than go to bed at a sensible time. I think there are one or two other threads on the forum about it and some people may have suggested some reasons why, but I can't remember the details. Maybe I'll have better look remembering this evening.
     

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