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Anyone else with a clearly identifiable trigger?

Discussion in 'General ME/CFS Discussion' started by msf, Feb 10, 2015.

  1. msf

    msf Senior Member

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    I though a straw poll might lead to some interesting results.

    What I mean by this is: a). did you have specific symptoms of a particular disease when you first fell ill? b.) did you have a positive test for active infection/active disease process with the same disease?

    I had the classic Yersinia Enterocolitica symptoms when I fell ill: false appendicitis, mesenteric lymphadenitis, and exudative pharyngitis. Shortly after I developed Reiter's Triad.

    A few months later I tested both IgG and IgA positive (indicating active infection) to Yersinia. Several months after that I tested positive to Yersinia by LTT.
     
  2. msf

    msf Senior Member

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    Oh, I didn't do this as a poll because I thought a detailed answer might be more illuminating.
     
  3. Vic

    Vic

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    Partially torn pec major. Then damaged SI joint, then tore something in front of hip. All on right side. @ 24 years old.

    Had a big flu-like illness when I was 10 that lasted several weeks. After that was never very energetic. Actually, could be energetic in bursts or when I was really excited, but my endurance, attention and senses sucked, especially when there was a lot going on. Was fairly Aspergery.
     
  4. halcyon

    halcyon Senior Member

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    My trigger was an acute enterovirus infection, later determined to be echovirus 30.
     
  5. Sherlock

    Sherlock tart cherry etc. for joints, insomnia

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    Czechosherlockia, USA
    After enormous stress I had a bad cold, including for the first time ever: both ears completely blocked. I'd never had even one ear blocked before. Now when my ear canals hurt, I know I'm getting sick.

    Three months later, I had what I believe was viral myocarditis.
     
  6. ahmo

    ahmo Senior Member

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    Immediate precipitant: "heat stroke" + stress. Preceded 3.5 years earlier by some sort of viral illness which pushed me into being "chronically fatigued" and begin seeking answers.
     
  7. Sherlock

    Sherlock tart cherry etc. for joints, insomnia

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    Czechosherlockia, USA
    Did you happen to have any fluoroquinolone antibiotics before that, Vic? Some have a boxed warning on tendon rupture.
     
  8. Vic

    Vic

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    No. I don't think I've ever taken anti-biotics. Maybe some anti-fungal cream. Oh I did take Tetracycline for a few weeks to help acne but I wasn't consistent with it and stopped. That was sometime in my teens though I think.

    That's interesting never heard of tendon rupture problems. Do famciclovir or valacyclovir have that same problem?
     
  9. Sherlock

    Sherlock tart cherry etc. for joints, insomnia

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    I would guess not. I believe that the fluoroquinolone problem occurs because it binds to Mg.
     
  10. melamine

    melamine Senior Member

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    Mine started with EBV/mono symptoms + symptoms of mild encephalitis. Because I did not seek Dx until a few months later, I never got a Dx. My post-viral symptoms might have been best characterized as chronic post-encephalitis for the first 18 years, from which time a variety of new symptoms began or worsened following several specific events and infections, but nothing that was diagnosed as a specific disease or tested for a specific pathogen at the time of acute infection. Later testing did show certain pathogens present at chronic levels: EBV, all coxsacki Bs and Adenovirus. Candida also appeared to be a problem by then.
     
  11. CantThink

    CantThink Senior Member

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    Mono/EBV & some kind of gastric issue (gastroenteritis?) all mixed together, with a sudden onset one day.
     
  12. msf

    msf Senior Member

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    When you say Mono, CantThink, did you test positive for acute infection (IgM, Monospot) at the time? I ask because I also thought I had all the symptoms of mono, when it was actually Yersiniosis.
     
  13. msf

    msf Senior Member

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    Halycon, I don't know much about enteroviruses, are there any specific symptoms, and did you have any of these?
     
  14. CantThink

    CantThink Senior Member

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    I don't know what test they used (it was a blood test) as it was back in 1991 and I was a child, but I tested positive on the blood test for acute infection of mono.

    What is Yersiniosis? How does one contract it?
     
  15. msf

    msf Senior Member

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    If it was the old one, that was less specific than the new one , I think. Yersinosis is caused by Yersinia Enterocolitica and Pseudotuberculosis, and the typical manifestations are gastroenteritis and reactive arthritis.
     
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  16. Kati

    Kati Patient in training

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    image.jpg IgM positive, IgG negative Epstein Barr virus in Nov 2008, following saliva exposure from a patient (I was a nurse)
     
  17. msf

    msf Senior Member

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    It's transmitted via the fecal-oral route.
     
  18. msf

    msf Senior Member

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    Wow Kati, that sounds fairly unequivocal...have you tried any antivirals, or been tested for EBV since then?
     
  19. dancer

    dancer Senior Member

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    EBV/Mono (positive mono spot and the EBV titers that indicated "recent infection") although our best guess was that it was reactivation (since I was in my mid-40s, and likely had EBV or mono as a child/youth). The odd thing was that I'd been sick for six months before they tested for mono, (tests had focused on cardiac issues) and I thought it strange that the mono spot was still positive after six months of several EBV/mono symptoms.
     
  20. Kati

    Kati Patient in training

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    I got EBV titers couple times, with mixed results, and about 18 months ago my HHV-6 titers were high, and I also have a problem with shingles. Valcyte has not been helpful but when I ran out for 10 days I felt much, much worse. I wonder if an IV version of Valcyte would have better penetration.
     

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