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Science to Patients: Talking ME, Exercise and the Mitochondria - with Dr Charles Shepherd
The latest video release from the Dutch group ME/cvs Vereniging, with Dr Charles Shepherd from the UK ME Association, and announcing a live chat session to be held Thursday, April 10, 2014...
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Anyone else noticed since having ME

Discussion in 'Post-Exertional Malaise, Fatigue, and Crashes' started by rosie26, Jun 30, 2013.

  1. rosie26

    rosie26 Senior Member

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    Spending years in bed with an illness, you think of all kinds of things.

    One of those things that came to mind was the memory of when I was well, and how if I spent too long laying down during the day my body would ache, telling me to get up and exercise.

    But since my collapse with ME I never get those aches, it's like my body needs to lay down and stay there. Not even in the severe years when I was laying down practically all day and all night, I still didn't get those aches.

    I guess I will know when I am well again, I will start getting the aches, telling me to get up !

    Anyone else noticed this.
  2. SOC

    SOC Moderator and Senior Member

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    For me it was falling asleep during the day. When I was well, I could never fall asleep during the day. Even if I were to lie down on my bed to rest, I'd be wide awake and uncomfortable lying still. After I got sick, I could sleep 5 hours during the day, and sometimes 20 hours a day. :eek:

    Now that I'm doing a lot better, I can't sleep during the day anymore, even if I lie down to rest. Kinda cool, actually. :D

    So, not a muscle ache thing for me, but it did go back to "normal" as I reached a certain point in recovery.
    rosie26 likes this.
  3. rosie26

    rosie26 Senior Member

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    Yes, your sign is not being able to sleep again during the day which means your heading in the right direction regarding your health.

    Since having ME, I have not been able to go over 60kg in weight. Every time I get close my ME flares severely and I lose the weight that I had gained.
    So another sign for me will be when I eventually manage to go over 60kg and keep the weight I will know I am on my way to good health again. Thanks SOC, loved your post.

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