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Anyone else have a spine curvature?

Discussion in 'General ME/CFS Discussion' started by xxRinxx, Oct 14, 2013.

  1. Allyson

    Allyson Senior Member

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    Australia, Melbourne
    yes but the narrow inflamed Eustachian tubes can be due to EDSand are a common symptom of it - hernias are also very typical of it; so is fainting and POTS is then a modification the body makes to avoid fainting

    A
  2. Allyson

    Allyson Senior Member

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    Australia, Melbourne
    all those syptoms do fit the EDS picture though - many of us ares tiff rather than flexible - but the Beighton score can clarify hypermobile isssues and if you can touch your thumb to wrist it is indicative,

    YOU do NOT NEED to be hypermobile now to have EDS is the latest research brom top British specialist s and others world wide - but if you are you almost certainly do have it

    my skin is not stretchy either - not sure yet if psoriasis is part of EDS but my mother had it very badly- they are still loking into that

    EDS symptoms vary a lot from person to person and you do not need all of them to qualify - there are many types and crossers between types are common too

    have you been assessed correctly for POTS/OI?

    cheers

    Ally
  3. xxRinxx

    xxRinxx

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    Paducah, Kentucky

    Oh yes I have Pots/OI quite badly. I use a wheelchair when I have to stand for too long because I've bottomed-out a few times and get faint easily.
    How would I go about getting tested or diagnosed with EDS?
    Allyson likes this.
  4. Allyson

    Allyson Senior Member

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    Australia, Melbourne
    That all does sound like and EDS picture - you need to find someone who knows how to diagnose it

    ask on an EDS fb page for a good informed doc near you

    here are more symptoms too in this handy link
    http://forum.notcrazy.net/index.php?topic=9571.0


    good luck

    Ally
  5. xxRinxx

    xxRinxx

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    Paducah, Kentucky
    Wow that symptom list is eye-opening, I'll definitely get that checked out. I have an app at my Rheumotologist soon so I will definitely take that list..I have most symptoms that line up with that, than i thought.
    Allyson likes this.
  6. Allyson

    Allyson Senior Member

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    Australia, Melbourne

    yes a lot of Aussies are finding they have EDS when tested properly for it Rinxx

    be aware thought that a lot of Rheumys do not know a lot about it and so may say you cannot have it as it is a rare disease - it is now known not to be the case

    so you may need to find one who does know about it if yours is not open to new research

    In the US apparantly - especially many rheumys - are not up with the current research sadly

    best of luck

    Ally
  7. Asklipia

    Asklipia Senior Member

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    I think these abnormal spine curvatures are not only caused by bad posture and weakening of muscles, but also by the pressure of an engorged lymphatic system.
    This is a self-perpetuing situation.
  8. Allyson

    Allyson Senior Member

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    that may be I do not know about that - but it did seem logical to me to read that a curvature could be caused by uneven ligament tension - the ligaments pulling unevenly on either side of the spine


    A

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