The 12th Invest in ME Conference, Part 1
OverTheHills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London.
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Anyone develop a severe trigeminal neuralgia(teeth pain)?

Discussion in 'Neurological/Neuro-sensory' started by sick2long, Dec 8, 2014.

  1. sick2long

    sick2long

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    About 3-4 months into this disease with what I now feel was a virus attacking me I developed the most painful trigeminal neuralgia. I could not even bit down on a piece of meat without getting stabbing pains in teeth.
    Hot and cold liquids caused severe pain. One time at the dentist with a very bad cavity the novacaine numbed the tooth he was working on but when using that blast of air on my teeth on the other side I almost jumped out of the chair. This teeth nerve pain is still with me 22 years after getting sick but is more sporadic now.
    I guess it is like all the other symptoms with me/cfs. You just don't know what symptoms the next day will bring.
     
  2. Little Bluestem

    Little Bluestem Senescent on the Illinois Prairie ❀❤✿Ƹ̵̡Ӝ̵̨̄Ʒ✿❤❀

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  3. picante

    picante Senior Member

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    A couple of years ago I had aching teeth (and cold sensitivity) in the upper left quadrant, and before I could get myself to the dentist, I wound up at Urgent Care with a diagnosis of shingles.

    Is it all on one side of your mouth? If not, then it's probably not relevant.
     
  4. sick2long

    sick2long

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    Thanks picante. When I was very sick years ago with whatever attacked me my son came home and gave me the chicken pox which put me in the hospital for 5 days. I feel like I have shingles many days. My skin is very sore to touch in certain neurological patterns such as on legs where L5 nerves go to the skin. I have given up on that natural antiviral. It just made me sicker after a month on it. I have to live like this. I have no other choice.
    The ringing in my ears is so loud right now that I have to turn the tv up so loud just to hear it.
    This will be my last post to anyone on this forum. I feel so sick just about every day I am going to lose my mind.
    Be well and if my some act of God or miraculous intervention I get better I will return. I to this day do not know what is wrong with me.
    Sick22222Long!
     
  5. CantThink

    CantThink Senior Member

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    I was diagnosed with TN in 2008 after 2 years fighting for diagnosis and going between dentists and doctors. Took Carbamazepine for it for a long time and then weaned off when i avhieved remission, then back on it, then off and so on. I then tried taking high doses of ALA, as I read studies of it being used in neuralgia. I have had a lot of success with it, but still have to be careful to avoid triggers (wind, cold on face etc) and get bouts of breakthrough pain.
     
    Last edited: Feb 1, 2015
    bspg likes this.

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