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Anybody know of a CFS specialist around Fl/AL area?

Discussion in 'ME/CFS Doctors' started by UWFgirl, Jan 30, 2013.

  1. UWFgirl

    UWFgirl

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    Hello, I'm new here. I just got back from the Mayo Clinic in Jacksonville, FL. I was sent there by a local neurologist who told me I might I have a possible ALS(Lou Gherigs disease) diagnosis! Scared and freaking out as Im a young mom of 2 and was getting ready to graduate from UWF...I was told by the specialist there that this is not ALS. He did send me to an infectious disease specialist because of a possible chronic EBV(mono virus)....The ID specialist said that he thinks I might have CFS...So here I am and wondering if anybody knows of the best Dr. to see about this since I want an answer to my symptoms. Since August I've been having shortness of breath here and there. Twitching, and occasional jerks. I've been losing my hair ever since I had mono back in 2005. I did have a couple of episodes that came and gone since then where I had slightly blurred vision, tingling, and fatigue. Just want to find a Dr. to possibly give the best help if this is what it is.
     
  2. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    There is a good autonomic specialist in Pensacola, if that helps. He himself has POTS. If you want contact info, let me know.

    Sushi
     
  3. UWFgirl

    UWFgirl

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    I would love his contact info. Thanks, Sushi.
     
  4. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    UWFgirl

    From POTSplace.org :


    Last time I looked, he website was still under development. I was his patient for several years when I lived in Florida so feel free to ask me about him (in a private conversation).

    He is a very compassionate and knowledgeable doctor.

    Sushi
     
    SanDiego#1 likes this.
  5. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

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    Concord, NH
    Welcome to the Forum!

    GG

    PS Might want to check out this website, outdated some, but my Dr was on it, and he has helped me a lot over the last 4 years.

    http://www.co-cure.org/good-doc.htm

    Perhaps you want to check out Dr Nancy Klimas also?
     
  6. SanDiego#1

    SanDiego#1 SanDiego#1

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    UWF- I would definitely have one of the Neurologist or whoever you see ck you out of MS, Lupus and Parkinson and don't just go for the Pots diag. These are critical to finding out what is really going on..

    San Diego #!
     

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