Any suggestions greatly appreciated!

[davidfibdou]

CFS for 2 years now. I don't really have any flu like symptoms ever (no fever, swollen glads, ect), no pain ever, don't get sick at all, just the debilitating fatigue.

My question is , although i know my symptoms can be caused my bacteria and viruses, is it weird that i dont get any sick symptoms other then the fatigue? its literally my only symptom. Ive never been on antibiotics but when I tried allicin, even high doses ive never herx'd.

After all my tests the following came back abnormal
- Cortisol - super high in the morning (was doing AdrenaCalm to lower it but now people are telling me not to as cortisol levels fluctuate)
- Natural Killer cells - very low , like a 3
- Doc did stool sample came back with e. hystolitica (i am currently taking paromymycin and tinizidal for it, but almost dont and havent felt any improvement in fatigue, also didnt herx)

Anyone have an insight? I know some of you out there are really knowledgeable!

my doc mentioned i should do imaging of my adrenal glands, what does that mean?

 

[A.B.]

Nobody can tell you much, if anything, with so little and vague information. It sounds like your doc is taking care of you, and that's good. Continue working to exclude whatever can be excluded.

 

[Sushi]

@davidfibdou

Welcome to the forum.

I agree that you need more information and tests to find a treatment that might work for you specifically.

Have you considered seeing an ME/CFS specialist for testing and treatment?

Best,
Sushi

 

[minkeygirl]

Were you diagnosed with ME/CFS? I never heard of adrenal imaging.

 

[davidfibdou]

hi yes i go to Dr. Levine in nyc , she specializes in CFS. yeah i never heard of adrenal imaging either ... she says i have atypical cfs. no viral symptoms ,just the fatigue!