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ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
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Discussion in 'General ME/CFS Discussion' started by davidfibdou, Feb 5, 2014.

  1. davidfibdou

    davidfibdou

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    CFS for 2 years now. I don't really have any flu like symptoms ever (no fever, swollen glads, ect), no pain ever, don't get sick at all, just the debilitating fatigue.

    My question is , although i know my symptoms can be caused my bacteria and viruses, is it weird that i dont get any sick symptoms other then the fatigue? its literally my only symptom. Ive never been on antibiotics but when I tried allicin, even high doses ive never herx'd.

    After all my tests the following came back abnormal
    - Cortisol - super high in the morning (was doing AdrenaCalm to lower it but now people are telling me not to as cortisol levels fluctuate)
    - Natural Killer cells - very low , like a 3
    - Doc did stool sample came back with e. hystolitica (i am currently taking paromymycin and tinizidal for it, but almost dont and havent felt any improvement in fatigue, also didnt herx)

    Anyone have an insight? I know some of you out there are really knowledgeable!

    my doc mentioned i should do imaging of my adrenal glands, what does that mean?
     
  2. A.B.

    A.B. Senior Member

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    Nobody can tell you much, if anything, with so little and vague information. It sounds like your doc is taking care of you, and that's good. Continue working to exclude whatever can be excluded.
     
  3. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    @davidfibdou

    Welcome to the forum.

    I agree that you need more information and tests to find a treatment that might work for you specifically.

    Have you considered seeing an ME/CFS specialist for testing and treatment?

    Best,
    Sushi
     
  4. minkeygirl

    minkeygirl Narcissism = lack of self awareness

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    Left Coast
    Were you diagnosed with ME/CFS? I never heard of adrenal imaging.
     
  5. davidfibdou

    davidfibdou

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    hi yes i go to Dr. Levine in nyc , she specializes in CFS. yeah i never heard of adrenal imaging either ... she says i have atypical cfs. no viral symptoms ,just the fatigue!
     

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