Phoenix Rising supports the Millions Missing global day of protest
Phoenix Rising is delighted to support the demands being made in the ME/CFS community’s first-ever global day of protest …
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Any suggestions for a placard for #MillionsMissing in London 12 May

Discussion in 'Upcoming ME/CFS Events' started by MEMum, Apr 28, 2017.

  1. ballard

    ballard Senior Member

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    Brilliant! Thank you.
     
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  2. Barry53

    Barry53 Senior Member

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    How about something along the lines of:-
    And then try hard to get it clearly in shot of news cameras, and make it hard for them not to show it.
     
    Last edited: Apr 30, 2017
  3. dangermouse

    dangermouse Senior Member

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    I think the "WHY........" statements state exactly what we all want to know and it'd maybe prompt some to look into it too.
     
    MEMum likes this.
  4. Barry53

    Barry53 Senior Member

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    A really good goal would be for it to appear clearly in a BBC news broadcast.

    My thought is to not alienate/confuse the innocently uninformed, who are the very people who need to become informed.
     
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  5. Mel9

    Mel9 Senior Member

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    Perfect!
     
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  6. slysaint

    slysaint Senior Member

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    If only.
     
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  7. antherder

    antherder a.k.a. Princess Dauer, Nematode Nation

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    @MEMum, This started off as a two line placard slogan, but has kinda morphed...erm...into a rap song... Any musos in da house/on da board wanna turn this into a youtube video? (Joke:))

    Title: Sound The Alarm - First Do No Harm!

    The world needs to see
    The neglect of ME

    It's time now to face
    The scandal of PACE

    The charges they follow;
    The study is hollow

    Statistically flawed
    Errors ignored

    The method is weak
    With more than one "tweak"

    GET doesn't cure -
    Just funding insure

    Making us move
    Won't symptoms improve

    It just makes us worse
    Puts us into reverse

    CBT cannot treat
    It's a type of deceit

    Thinking you're well
    Is useless as hell

    When your body is ill
    -it's not about will

    We just do not choose
    Our whole lives to lose

    The "Malingerer" Myth
    Is a theory that's FITH*

    It's patient abuse
    No room for excuse

    The Trial on trial
    The verdict: DENIAL

    Guilty - all counts
    It's time to renounce

    ME is a prison
    With bars of derision

    Told that we're lazy
    Deluded and crazy

    But our bodies are broken
    Suffering unspoken

    A life sentence for us
    With a label of MUS

    Unable to trust
    In a system unjust

    Years of neglect
    No care, no respect

    No compassion or reason
    It's medical treason*

    No crime we've committed
    It's time we're acquitted

    We're not guilty of lying
    PACE is illness denying

    Too many have died
    Because "science" has lied

    Sound the alarm!
    First do no harm!

    Enough of inaction
    We demand a retraction

    The (PACE) boil needs Lancing
    The truth is advancing

    Real studies are proving
    Why our bodies aren't moving

    PACE is not science
    We march (rap) in defiance

    Cos the world needs to see
    The neglect of ME


    It's a work in progress, needs a bit of...tweaking... Not sure about the order, or the title (likely been done before), but I figure if I don't post it now, I'll forget I wrote it...(The probability of that is quite high. Statistically robust, one might say.)

    Maybe some of the two liners might be placard worthy, with bullet points added underneath, highlighting some stats like the amount of money wasted etc, as other posters have mentioned.

    *(FITH = F****d In The Head.)

    *The phrase, "It's medical treason," refers to medicine in a broad sense, not any particular individual(s), because the way PWME are treated by the medical profession in general is a betrayal, in my opinion, of The Hippocratic Oath. So there.:)
     
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  8. suseq

    suseq

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    Just a few ideas:
    • Don't Misrepresent ME
    • CBT/GET Misrepresent ME
    • I'm here because #Millions Missing can't be
    • We need Bio Research not Psychotherapy
    • Help us to help #Millions Missing due to ME
    • #Millions Missing due to ignorance of ME
    • We need you to help #Millions Missing
    • If you don't understand, please ask about ME
    • I'm here to raise awareness of ME
     
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  9. MEMum

    MEMum Senior Member

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  10. slysaint

    slysaint Senior Member

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    Just occurred to me the the #MM protest are smack bang in the middle of the Eurovision song contest (9th, 11th, final is on the 13th). Not sure how, but anyway to hijack coverage? I'm thinking more twitter/facebook?

    Obviously too late to enter though:D
     
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  11. MEMum

    MEMum Senior Member

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    I'm definitely not singing, that would just drive people away!
     
  12. MEMum

    MEMum Senior Member

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    Maybe a red Abba style wig?
     
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  13. slysaint

    slysaint Senior Member

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    Or you could dress up as Florence Nightingale (you could still wear the wig if you wanted altho it could send mixed messages:D).

    Given all the coverage the Mental Health Awareness week (also this week) is getting, maybe placards with:

    ME is NOT a mental illness

    It might cause the usual controversy but at least provoke discussion.
     
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  14. Barry53

    Barry53 Senior Member

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    Maybe to avoid it being confused as mental health prejudice, tweak it slightly ...

    ME is NOT a mental illness - so why do psychiatrists think they can cure it!
     
    MEMum likes this.
  15. Barry53

    Barry53 Senior Member

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    Make it a long wig and do Lady Godiva!
     
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  16. MEMum

    MEMum Senior Member

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    Not a pretty sight and where would I get a horse at short notice, even if I could ride!
     
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  17. SamanthaJ

    SamanthaJ Senior Member

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    "ME - It's not in our minds so stop messing with our heads"
     
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  18. Murph

    Murph :)

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    RESEARCH ME!
     
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  19. PatJ

    PatJ far and free I gaze

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    ...so stop messing with our heads and hearts.

    CFS/ME is bad enough. We don't need disbelief and ridicule added to our burdens.
     
    SamanthaJ likes this.

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