The 12th Invest in ME Conference, Part 1
OverTheHills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London.
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Any Luck with Shrinking a Fibroid? And, What About My Liver?

Discussion in 'Hormones' started by Misfit Toy, Apr 28, 2016.

  1. Misfit Toy

    Misfit Toy Senior Member

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    Hi everyone. Yesterday I developed horrible pain on the side where my only ovary is. It started to affect my back and I was in so much pain. It was the middle of the month (ovulation) and I thought that was it, but at 5 am, I finally got out of bed and went to the ER because I was in so much pain.

    They immediately suspected Apendicitis. So, I had to drink this stuff and have a Cat Scan with dye. The dye was beyond weird and I am wondering if I am having lingering affects from that.

    Anyway, I found out a few things which have me quite upset. I am so tired of finding out new things. I can't take this ride anymore. I just want to get off.

    I have an endometrioma...a mass. In the right lower quadrant.

    And, I have a large fibroid measuring 6.5 cm X 6.2 X 8.4 cm.

    I knew that I had a fibroid but I did not know how big it was.

    Does anyone have any recommendations regarding a fibroid? Is progesterone good for a fibroid, or bad? I do not want to have a hysterectomy.

    Also, my results came back saying I have lesions on my liver. Is this even normal? Hypodense lesions. They may represent cysts and there is a 14 mm cyst in the left lobe of the liver.

    What does that even mean and is it something I should be concerned about? The doctor never even told me.

    I am seriously at my wits end. How much more can I have going wrong? I have so many not even symptoms, but problems at this point. Genuine things that are wrong.

    If anyone has any info on fibroids, or any of this, please do tell. I have to say, I am not too sure about iodine treatment. Some people do well and some people end up sicker than a dog.

    I feel crazy. Between being so hypo and not up to the accurate dose of T3 because I am trying to go slow and just all of this crap, I really feel "off." Sunday was a good day and just like that...I am in the gutter. They gave me dilaudid. I wonder if the dye can also affect one mentally? I just don't know.
     
  2. Richard7

    Richard7 Senior Member

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    I cannot answer your questions, but it is horrible that you are going through this and I hope it gets better.
     
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  3. AndyPandy

    AndyPandy Making the most of it

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    Oh dear @Misfit Toy

    Such bad news for you. Hoping for better days for you ahead.

    Best wishes Andy
     
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  4. CCC

    CCC Senior Member

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    A fibroid so small? I would be so lucky!

    Jokes aside, I'm sorry you're going through this.

    I don't have ME/CFS (I'm here because of my son), but in case this helps you: everything I have done has only stopped the growth, not shrunk it: green tea extract, sufficient vitamin D + B2, vegan (+ meat once a week - it's all my body needs), no coffee (ouch), and exercise. I'd understand if this isn't appropriate, but you asked the question and this is one answer.

    If you have no fibroid symptoms, maybe focus on the liver thing?
     
  5. Richie

    Richie Senior Member

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    Google nattokinase,natokinase/serropeptase. Various opinions on it, some say a scam, others that it helps.
     
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  6. u&iraok

    u&iraok Senior Member

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    I have a friend who had fibroids and it really messed with her hormones. She gained weight, had back and hip pains and would get in such dark moods I didn't even know her.

    The doctor recommended that she wait and see if they would shrink but they didn't. They told her it was like she was x-number of months pregnant and the fibroids were pressing on her back, just as a baby would!

    She got them removed by a specialist. They found a grapefruit sized one and several smaller ones. It was an outpatient surgery---she went home that day. She just had to rest for a few weeks and now she is doing so well!! Best I've ever seen her!
     
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  7. Misfit Toy

    Misfit Toy Senior Member

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    @u&iraok -yes, I am going to see a specialist, I hope.

    Someone mentioned nattokinase which is soy. Can't have soy.
     
  8. CCC

    CCC Senior Member

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    What about serropeptase?

    Some people have had good results from it.
     
  9. wastwater

    wastwater Senior Member

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    my friend has fibroid they recommended a hysterectomy but she refused they eventually shrunk after menopause.
    is there a link to anti nmda with this I wondered but I think that was a teratoma think that's a different thing.
    liver function is often abnormal with me/cfs.
     
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  10. Richard7

    Richard7 Senior Member

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    I do not know if nattokinase works but natto does not have to be made from soy beans
    http://blog.culturesforhealth.com/black-bean-natto/

    I have just recently started making it at home in an electrically heated yoghurt maker (to get a cheaper source of k2) and am really enjoying it. But a lot of people on the net seem to be doing it in ovens or coolers kept at about 38-45C 100-113F (I think).

    Natto is one of those foods I enjoy even though I could not stand the first few times I tried it (olives and cavolo nero being two other good examples).

    I have not tried eating it the japanese way but just eat it like I would eat an unfermented legume. Last night I had some with a green curry, On the weekend I had some with some borlotti beans tomatoes, chillis, onions and garlic.

    Inspired by the above link I started a culture with black turtle beans this morning.
     
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  11. Misfit Toy

    Misfit Toy Senior Member

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    I have no idea why nattokinase is good for a fibroid. Honestly, making it is not for me. Too tired, too sick...no energy.
     
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  12. leela

    leela Slow But Hopeful

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    You might want to look into this product:
    https://www.arthurandrew.com/products/fibrovera

    I have not used this one, but I used another of their fibrinolytic products years ago and found it to be of very high quality and effectiveness.

    Generally Nattokinase should not cause soy-related issues because it is an enzyme extracted from the fermented soy product and contains none of the soy proteins.

    Important to note though that all the fibrinolytics (nattokinase, serrapeptase, lumbrokinase etc) thin the blood by eating excess fibrin.
    Most PWME/Lymies have hypercoagulation, so this works in our favor; but always best before considering such a regimen to make sure you don't have a problem with inadequate clotting. There is a simple blood panel for this: PT (Prothrombin Time), PTT(Partial Thromboplastin Time), and INR (International Normalized Ratio).
     
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  13. Misfit Toy

    Misfit Toy Senior Member

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    Leela, this sounds great. I remember having a problem with nannokinase years ago and last year P5p kept me up all night. Ugh!
     
  14. Richard7

    Richard7 Senior Member

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    @Misfit Toy I certainly get the energy thing.

    I seem to have had a bit more energy for the last couple of weeks and it has clearly gone to my head.

    Outside my house I have beautiful tomato seedlings waiting to die when the frost comes because a burst of energy in October or November convinced me that I would have the energy to put them in the garden.

    I should know better

    @leela I find it interesting that natto comes with both a blood thinning component and vitamin k which aids in clotting. Maybe it could not have survived as a food if it had only the former.

    I didn't know about the hypercoagulation in PWME do you know what causes it?
     
    Last edited: Apr 30, 2016
  15. CFS_for_19_years

    CFS_for_19_years Hoarder of biscuits

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    IMHO, you should not take any hormones (including progesterone) as these may cause the fibroid(s) to grow. This is a hotly debated issue, but I wouldn't want to take any chances.

    I have some large fibroids myself, but have never had the courage to undertake any specific treatment for them. I've bookmarked a couple of pages:
    http://www.fwhc.org/health/fibroids-help.htm
    https://www.energeticnutrition.com/vitalzym/fibroid_tumors.html
    You can find much better prices for their supplements on other websites, including ebay.

    If I were to undertake something like this, I'd prefer to have the guidance of a naturopath to be sure I was supporting my liver and choosing the best supplement regimen.
     
  16. PDXhausted

    PDXhausted Senior Member

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    I don't have fibroids but I've been struggling with large endometriomas and those have definitely screwed up my hormones and had an effect on my mood.

    I went to a couple doctors who would only do surgery for treatment, but I'm not a surgical candidate due to my severe ME/CFS. So I finally found a radiologist who would drain my endometriomas and it was a huge help and relatively easy procedure.

    I tried birth control to shrink/prevent growth of the endometriomas but that was a disaster and made my CFS symptoms much worse. I don't have liver lesions (at least not visible on a cat scan with no dye), but I do have elevated liver enzymes and we believe I may have problems with my liver in the way I metabolize hormones, as my whole disease seemed to start with taking continuous birth control to prevent the growth of endometriomas over a period of about 8 years.

    I have heard that things like serrapeptase can also help with endometriomas or cysts, but have not tried this myself.
     
  17. CCC

    CCC Senior Member

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    How is this fibroid thing going for you? Have you considered this procedure?
     
  18. leela

    leela Slow But Hopeful

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    Hey CCC, I dunno if it's my computer but your link isn't working for me :(
     
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  19. Misfit Toy

    Misfit Toy Senior Member

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    Me either...it's not working. As soon as I get more balanced thyroid wise, onto the fibroid I move. It's too big to shrink so an embolization is next.
     
    AndyPandy likes this.
  20. Hip

    Hip Senior Member

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    There are some details in this post of a forum member who rapidly shrunk her fibroids down to nothing using the spin trap antioxidant tempol.
     

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