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Can You Come for a Visit? My ME/CFS Says No
My daughter and son-in-law just had a baby last week. We are thrilled. But we won't be able to see the baby or hold her any time soon. We won't be able to take over little gifts or help out with housework or babysitting.
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Any Londoners...

Discussion in 'ME/CFS Doctors' started by vli, Jan 25, 2013.

  1. vli

    vli

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    Do you know of or hv u seen any immunologist or infectious disease doc that seems open-minded?

    I know this is a long shot but it beats googling "london immunologist" and going through results one by one which i am also doing and i need to ask someone who fits those labels some quite specific questions.
  2. Jenny

    Jenny Senior Member

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    I have vli. I'll pm you.

    Jenny
  3. ukxmrv

    ukxmrv Senior Member

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    I found Prof Brostoff open minded. Also Dr Murphy (Royal Free) apart from her appalling support of the PACE trial and SW has been useful before in the past. Depends on the question.

    Hope that helps. Send me a PM if you want further info.
  4. Sasha

    Sasha Fine, thank you

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    Dr Enlander, an ME/CFS specialist who is a Brit but is based in New York, visits London regularly and sees patients. He runs a panel of tests for things including HHV6 (the bloods go to a lab in the States). Not sure if that's what you're looking for but here's his website:

    http://www.enlander.com/
  5. vli

    vli

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    thx Sasha, but i just spent a whole year here in ny doing ampligen w dr E. He can't answer the issues that i have and in fact i'm leaving ny in 5 days. U cld PM me if u'd like to know abt treatment w dr E.
  6. Sasha

    Sasha Fine, thank you

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    Hi vli - I'm sorry Ampligen didn't work out for you.

    That's OK, I already know about Dr E's treatment but thanks for the offer.

    I hope you find someone in London! :)
  7. vli

    vli

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    FWIW, Ampligen did help, but in hindsight it was just too darn slow and i might've seen more if i'd been more willing to be more housebound or bedbound--as i was only on half the max dose. So now i've learned the hard way to grit my teeth thru antivirals.
    Sasha likes this.
  8. SanDiego#1

    SanDiego#1 SanDiego#1

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    Vli- You may want to try an Infectious Disease Dr. I have had good success with one here in the States.

    San Diego #1
    vli likes this.

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