So, when "they" finally find a cause / treatment / cure whatever, will UK patients still be denied it because "MUS"? Will the denial hold fast while the rest of the world gets treated and gets their lives back? I'm not going to talk to my GP or any health professional about my ME/CFS ever again. I'll just get any new or problematic symptoms looked at on a case by case basis. But... if a treatment does become available, I'd like to think I'll be able to get hold of it. Hopefully it will be obtainable shipped from overseas pharmacies? Can anyone imagine a ban on the meds on the NHS long after everyone else starts taking them?