Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
Discuss the article on the Forums.

Any Experience with Dr. Brewer Nystatin + EDTA Intranasal?

Discussion in 'Addressing Biotoxin, Chemical & Food Sensitivities' started by energyoverload, Oct 19, 2014.

  1. energyoverload

    energyoverload Senior Member

    Messages:
    155
    Likes:
    137
    London
    Hi

    Has anyone on this forum had the opportunity to try Dr. Joe Brewers revised protocol for treating fungal mycotoxin secreting reservoirs that he believes are likely located in the sinus passages? I believe the latest protocol comprises the intranasal delivery of Nystatin, EDTA and a Surfacant.

    Just wondering really if anyone has had any response good or bad to his protocol or if they know what doses are used on the protocol?

    I read the post by the patient advocate here: http://cfspatientadvocate.blogspot.co.uk/2014/10/dr-joseph-brewer-at-ilads-2014.html

    Cheers,

    J
     
  2. ukxmrv

    ukxmrv Senior Member

    Messages:
    4,363
    Likes:
    4,477
    London
    yes, there has been discussion of this before. However, I can't find the threads. You may find them through a search

    Bumping this up as others may remember the threads
     
  3. Little Bluestem

    Little Bluestem All Good Things Must Come to an End

    Messages:
    4,741
    Likes:
    5,783
  4. energyoverload

    energyoverload Senior Member

    Messages:
    155
    Likes:
    137
    London
  5. aquariusgirl

    aquariusgirl Senior Member

    Messages:
    1,573
    Likes:
    534
    just saw him last week.. he has me on amphotericin b plus edta.. I think those are still the first line txtmetns if tolerated. he has patients from the UK.. fyi.. they have to get someone here to ship the stuff to them tho.. the pharmacy wont ship overseas.
     
    Forebearance likes this.
  6. Forebearance

    Forebearance Senior Member

    Messages:
    561
    Likes:
    353
    Great Plains, US
    I hope this goes well for you, aquariusgirl!
    My version of his protocol has been really helping me. It has been reducing inflammation, which basically reduces all my ME/CFS symptoms.
     
  7. slayadragon

    slayadragon Senior Member

    Messages:
    1,118
    Likes:
    502
    twitpic.com/photos/SlayaDragon
    I used an extremely similar version of this many years ago via Dr. Dale Guyer in Indianapolis. I was living in a moldy house at the time and was quite sick. I found it a little helpful. My understanding is that those two doctors know one another, so I suspect that that is where Dr. Brewer got the idea.
     

See more popular forum discussions.

Share This Page