Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Any Experience with Dr. Brewer Nystatin + EDTA Intranasal?

Discussion in 'Addressing Biotoxin, Chemical & Food Sensitivities' started by energyoverload, Oct 19, 2014.

  1. energyoverload

    energyoverload Senior Member

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    London
    Hi

    Has anyone on this forum had the opportunity to try Dr. Joe Brewers revised protocol for treating fungal mycotoxin secreting reservoirs that he believes are likely located in the sinus passages? I believe the latest protocol comprises the intranasal delivery of Nystatin, EDTA and a Surfacant.

    Just wondering really if anyone has had any response good or bad to his protocol or if they know what doses are used on the protocol?

    I read the post by the patient advocate here: http://cfspatientadvocate.blogspot.co.uk/2014/10/dr-joseph-brewer-at-ilads-2014.html

    Cheers,

    J
     
  2. ukxmrv

    ukxmrv Senior Member

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    yes, there has been discussion of this before. However, I can't find the threads. You may find them through a search

    Bumping this up as others may remember the threads
     
  3. Little Bluestem

    Little Bluestem All Good Things Must Come to an End

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  4. energyoverload

    energyoverload Senior Member

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  5. aquariusgirl

    aquariusgirl Senior Member

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    just saw him last week.. he has me on amphotericin b plus edta.. I think those are still the first line txtmetns if tolerated. he has patients from the UK.. fyi.. they have to get someone here to ship the stuff to them tho.. the pharmacy wont ship overseas.
     
    Forebearance likes this.
  6. Forebearance

    Forebearance Senior Member

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    I hope this goes well for you, aquariusgirl!
    My version of his protocol has been really helping me. It has been reducing inflammation, which basically reduces all my ME/CFS symptoms.
     
  7. slayadragon

    slayadragon Senior Member

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    twitpic.com/photos/SlayaDragon
    I used an extremely similar version of this many years ago via Dr. Dale Guyer in Indianapolis. I was living in a moldy house at the time and was quite sick. I found it a little helpful. My understanding is that those two doctors know one another, so I suspect that that is where Dr. Brewer got the idea.
     

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