Patients need to have such dvds in their hands so they can physically hand them to their local physicians to watch later. This is a very powerful tool in our hands. Most physicians do not have the time to get to know our illness in an office visit. I haven't seen any dvds like this in the US. The movies are all as invisible as the illness itself. They are available either on YouTube or by rent or in some formats not supported. If we are trying to make this illness visible to people, why are we hiding them in weird ways? How come they are not available in ready to play DVD formats?