Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Any doctors in the NJ/NY area that test for low blood volume?

Discussion in 'ME/CFS Doctors' started by Bryan, Jul 1, 2015.

  1. Bryan

    Bryan

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    Hi, I have been disabled for a couple of years now and I have not found a doctor that knows anything about low blood volume? Would anyone be able to point me in the right direction? I am looking for a doctor that knows how to run the right tests?
     
  2. ninauae

    ninauae

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    yes I can help you and send me your lab results and how is your BP.
     
  3. SOC

    SOC

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    You could try to find a dysautonomia specialist, although they are few and far between. Some cardiologists and electrophysiologists know about low blood volume. You could also ask your doctor if s/he is willing to test your aldosterone and/or vasopressin levels.

    Have you ever checked your pulse pressure (systolic BP minus diastolic BP), especially first thing in the morning before you get out of bed? If it's very abnormal, that might get your doctor to sit up and take notice.
     
    Valentijn likes this.
  4. SDSue

    SDSue Southeast

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    It might depend on your reason for wanting this information.

    Most practitioners use a CBC, which checks the ratio of plasma volume to RBC volume, to check for blood volume problems. Vanderbilt dysautonomia clinic has found that hypovolemia in some dysautonomia patients often results in a proportional or nearly proportional decrease in both plasma volume and RBC volume. Therefore, a CBC would not normally reveal hypovolemia that may be occuring in some dysautonomia patients.

    Thus, Vanderbilt uses the Daxor blood volume analyzer. Here is Daxor’s facility locator.
     
    SOC likes this.
  5. Misfit Toy

    Misfit Toy Senior Member

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    USA
    Dr. Susan Levine in NYC.
     

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