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Antiviral or Methylation? To be or not be?

Discussion in 'Antivirals, Antibiotics and Immune Modulators' started by Farhan Muzzumil, May 5, 2015.

  1. Farhan Muzzumil

    Farhan Muzzumil

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    Allahabad, India
    Hello there, I am here from India, I get my CFS when I was only 18 years old. It is now maybe 6 years and I am 24 now and I have not tried anything yet except pacing and pre emptive rest. And I get my CFS after an episode of chicken pox and I am nearly 70 percent of my pre illness level and I am working full hours and very concerned about it? please help me?
     
  2. *GG*

    *GG* Senior Member

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    Concord, NH
    @Farhan Muzzumil

    You might want to check out LDN, Low dose Naltrexone.

    Not sure what kind of help you are looking for, are you wondering if you should take antiviral medicine or try methylation? if so, you might need to discuss your lab test(s) results and/or symptoms.

    GG
     
    ahmo and helen1 like this.
  3. Mary

    Mary Senior Member

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    Southern California
    Is it possible to cut back your working hours? I know this can be difficult to do, but several of us kept pushing ourselves beyond what was good and ended up much worse off. It is very good that you are pacing and doing pre-emptive rest.

    I haven't taken any antivirals so can't advise you there. I have, however, had good results with Freddd's B12 methylation protocol: http://forums.phoenixrising.me/index.php?threads/active-b12-protocol-basics.10138/

    It's important to start slowly to see you react. Also, read about the potential for low potassium - this is very important. Often when someone starts to take the methylation supplements, it causes an increased need for potassium as cells start to multiply and heal etc., and this can cause a rather sudden potassium deficiency. For me, it caused severe fatigue and muscle aches. Other people get cardiac symptoms. In any event, because I knew this could happen, when the fatigue hit I started taking potassium and worked up to 1000 mg. a day and that fatigue went away, so I knew it was from low potassium. Otherwise I would have stopped the methylation protocol because it made me so tired. Overall I am doing better on it, though we are all very different.

    Here's a link with a lot more information: http://forums.phoenixrising.me/index.php?entries/caledonias-methylation-links.1744/
     
  4. Dreambirdie

    Dreambirdie work in progress

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    Hello @Farhan It would probably be best if you could find a health professional in your locale to work with. This illness is so complex and what works well for one person does not always work well (or at all) for another. For that reason it's always helpful to have someone close by to check in with, who can help assist you in figuring out the best way to proceed.

    If your ME/CFS began with chicken pox, then maybe treating viral issues would be something to investigate. Perhaps there are diagnostic tests that would be helpful to determine how your immune system has been impacted by that and what ant-viral drugs, if any, are appropriate in your case. You would need to find a doctor who is knowledgeable about this.

    Methylation is very challenging for some of us, and there are various ways of approaching it. Some people do well with the MB12, some don't tolerate it well at all. Some do better with the HB12... or not. Some do better with methyl folate, some with folinic acid. The dosing varies enormously. Some people can handle *huge* doses, some take teeny tiny smidges. Some need a lot of potassium, some don't. Some need other co-factors to help the methylation along. So trying "methylation" supplements is not a simple procedure. Getting your methylation SNPs tested can be helpful, though some have done the supps w/o testing.

    I encourage you to rest as much as possible to avoid a big crash. That is a hard lesson many here have learned.

    I wish you good luck with whatever path you choose.
     
  5. Adlyfrost

    Adlyfrost Senior Member

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    Hi Farthan. Here are considerations- hope this helps!

    1. One can find info on good anti-viral doctor John Chia by googling him. Some (though very few) of his patients were cured with antivirals. Though it is difficult to be his patient one can sometimes find a doctor nearby who can prescribe anti-viral for shingles/ chicken pox. I am not advising but this might be an option to consider.

    2. Sometimes anti-viral drug therapy does not work. Sometimes it works partially but one still have retro active viral symptoms. Some people turn to herbal anti-virals such as equilibrant. Some people can't tolerate that one, but there also are great milder herbal antivirals.

    3. It could be beneficial to go with methylation whether anti-virals work or not. I am basing this from my own personal experience and what I have read. Some people take herbal anti-virals with it.

    4. I think methylation is part of a preventative good health plan, at least it has been for me. I think everyone could benefit from taking B12, preferably methylated, and methylfolate, or at least work up to it (many of us are not there yet because some sick people have side-effects in the beginning). This is just my opinion. Not advice per say.

    Why B12 and methylfolate? Because from what I have read, these nutrients help our body express genes that help us detoxify and repress genes that are not beneficial. To the best of my knowledge, if one doesn't need methylation for CFS, the worst that will happen is expensive urine.

    However, sometimes methylation can make symptoms of CFS worse, or heart palpitations or other side effects. Many people believe this indicates that one DEFINITELY needs it! But in this case, one may want to consider going low and slow to work up to it. (Many people who are sick with CFS also feel they benefit from liposomal glutathione too, and also lots of minerals).

    From my personal experience, poor methylation and low glutathione= high heavy metals. It seems like heavy metals can precipitate all kinds of weird viral attacks! In my personal experience, the more that I methylate and detoxify, the better insurance that viral attacks and fatigue do not relapse.

    I also think getting a genetic test to see which nutrients I needed has been very beneficial. I have a very good doctor who interprets the genetic test and helps with methylation and also treats long distance.

    If my CFS started after chicken pox, I would have seriously consider anti-viral drugs first- only because of the success stories I have heard from people with CFS who in actuality had a mild form of shingles and were treated successfully with anti-virals. Hope you feel better soon!
     
    Last edited: May 8, 2015
  6. Adlyfrost

    Adlyfrost Senior Member

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    NJ
    IMO, metal / mercury fillings can contribute to chronic fatigue but can be replaced with non-toxic ones.

    Water also can be poisoned with heavy metals or other pollutants esp. if it is from a well. Since I haven't been able to get mine tested I drink bottled water.
     
    Last edited: May 8, 2015
  7. Farhan Muzzumil

    Farhan Muzzumil

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    Allahabad, India
    Thanks for all of your concern above @Adlyfrost @Dreambirdie and all. First the reason for late replying. I can only do something except for my work on Sunday as I am already tired and exhausted and I try to get my fullest sleep.
    First there are some infrastructural problem here, the tests you all are talking or not available in my locality or any GP doesn't know anything about them or I am unable to afford them.
    That is why I ask for your help my fellow comrades, sounds communist no.
    One thing that any CFS sufferers fear than its vivid nightmares are relapses and I am no exception.
    And assume that I can not done any of testing and or I am unable.
    I only rely on your experiences and advice.

    And to open my mindset I am thinking of going slow and easy and I will go for methylcobalmine first in injection form and will check it out in winter, or in december.

    Summers heat is boon for me I am nearly normal now or the best a sufferer can feel.
    for me the change of seasons is the worst, it has something to do barrometric pressure.

    that is this.
    Hope to hear further from you.
    My fellow comrades )
     
    ukxmrv likes this.
  8. Farhan Muzzumil

    Farhan Muzzumil

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    Allahabad, India
    @Mary I will not be able to cut back my working hours because they don't know about limited working hours. Here in there eyes I am normal person just like everyone else. we know very how hard it is to be accepted as patient when you are accused of fabricating things and all.

    And what will I do to be get accepted as a patient there are no disability benefit or all. But I pace in my job I learn to live in my cacoon but the unpredicability has caused me my job in the past.
     

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