Hi all. Just here to give another update.
I have been on Tetralysal and Clarithromycin for the last while. The Tetralysal made me REALLY sick so we halved the dose; that made me half as sick lol.
One thing I really noticed on the Tetralysal was severe night sweats and a lot of heat emanating from my body during the day.
The really bad phase seems to be over on most days. I am at maybe 35% energy. The brain fog continues to be a major stumbling block for me. Also, I don't feel strong...some chest pain, back pain, etc......but I am able to get some things done anyway. The place is definitely cleaner, if nothing else.
Just spoke to my doctor. Relayed the concerns about the brain fog, which actually seems to be a little worse now, as compared to several months ago. Was told that high levels of enterococcus was found in my stool, via the metagenomics stool test.
Told my doctor about my concerns about taking antibiotics for so long without probiotics, which I cannot tolerate....not sure how risky this is, but not sure I have any options.
As some of you might recall, I was on an HIV/Hep B drug called Viread, which I began during the XMRV thing. It helped some, and when I tried to stop it a few years ago, I was bedridden again within a month and VERRRRRY sick. My doctor suspected it was acting on the HERV.
For the last few months, I have been taking the Viread every few days and I haven't noticed any major difference so I will stop the drug altogether now. My doctor didn't seem to see a problem with this.
I will get a new treatment plan soon.
Thanks for reading
xox