1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Hunting down the cause of ME/CFS & other challenging disorders - Lipkin in London
In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in order to track down the source of an illness, with examples ranging from autism to the strange case of Kawasaki disease.
Discuss the article on the Forums.

Anti Fungals with MCS anyone?

Discussion in 'The Gut: De Meirleir & Maes; H2S; Leaky Gut' started by helsbells, Aug 19, 2010.

  1. helsbells

    helsbells Senior Member

    Messages:
    297
    Likes:
    8
    UK
    Has anyone with marked MCS coped with them. LDN has flared candida in me and was making me me very tired but after stopping I have now got thrush. I am am taking nystatin, I was wondering if anyone has tried diflucan - i was just going to try taking one but am very wary as i think sporonox made my bladder much worse some years ago but equally i have been feeling so rough generally though actually a syatemic might actually be a good thing if I could tolerate it. As an aside i would like to start a thread to ask if anyone feels LDN has made their allergies worse but am so mashed I don't know where to put it.
     
  2. ukxmrv

    ukxmrv Senior Member

    Messages:
    3,509
    Likes:
    2,043
    London
    I'm better with diflucan that I was with nystatin. Also better with ketaconazole products,. Haven't tried LDN. Sorry to hear about the flare
     
  3. helsbells

    helsbells Senior Member

    Messages:
    297
    Likes:
    8
    UK
    Aah thats interesting, thanks for getting back I am somewhat girded by that - thanks for the sympathy also - LDN has been a weird one for me I think I have to back on it but has deffinately put the cat among the pigeons with out bringing obvious benefits.
     
  4. sphynx on roundabouts

    sphynx on roundabouts

    Messages:
    68
    Likes:
    5
    Hi Hellsbells!

    I'm wondering if you have decided to go ahead with the Diflucan? I've been taking it long term at 50mg per day and found it to be very helpful without any problems or side effects. I have severe MCS such that I cannot receive visitors without them using my special washing products and detergents. Even at that I cannot see most people because I can smell the horrible chemical smells from their cars. It's different for each of us but I just wanted to let you know that for this severe MCSer, Diflucan has given no problems.
     
  5. taniaaust1

    taniaaust1 Senior Member

    Messages:
    8,061
    Likes:
    5,043
    Sth Australia
    For antifungals.. ive just used Nystatin (which i seem to be fine with) and also Olive Leaf extract.
     
  6. helsbells

    helsbells Senior Member

    Messages:
    297
    Likes:
    8
    UK
    Thanks so much for your input, we sound about the same MCS-wise - i always say if I could change one thing it would be this, to be so out of step with the modern world, no visits from Friends, no holidays or staying over is very isolating. Anyhoo i did take one and I did survive but it did affect me. I was concerned that LDN had triggered Candida and wondered if i would get a bounce from a stronger anti-fungal so it did at least answer that question ( I didn't) i felt exhausted and very ill tempered on the day I took it, bad sleep and some pelvic pain so I don't think I could take it long term. I can take nystatin so I do get to take something if I need it. I sort of tolerate LDN but take it at tiny doses so it always worth persevering isn't it. i was actually pleased that I in one of these positive RV studies someone mentioned MCS because it is so disabling in itself. All the best :)
     

See more popular forum discussions.

Share This Page