I agree
@lansbergen, labels dont always = disease
there have been some honest attempts over the years to find out what is wrong with me.
differential diagnosis is difficult because so many things overlap.
no way do i have 15 discrete diseases. but some doctors think i do. thats the problem. the overlaps are not being taken into account.
some doctors went the other way and thought i had no diseases, just a "psych" problem that resembled 15 different diseases, INCLUDING FUSED SACROILLIAC JOINTS. how can a psych problem cause joint fusion. Jokers.
i cant win. I dont have 0 diseases. i dont have 15 diseases.
all i know is that just about everything improved greatly with what appears to be mast cell treatment. the clear physical things like anky spon, intersection syndrome, EDS HT, all improved. and so did the vertigo, dry eyes, tinnitus, headache, NMH, PEM, my autism-like behavior (i line objects up in straight lines, in size order. i cant stand it when somebody moves something out of line). the strange non-traumatic memory flashbacks also stopped.
i just dont know what to make of it all, but mast cells seem to be in the middle of this mix somehow.