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Another invisible condition whose patients aren't believed

Discussion in 'Other Health News and Research' started by Denise, Sep 18, 2015.

  1. Denise

    Denise Senior Member

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    "In the blink of an eye
    Some people suffer eye pain so excruciating they feel suicidal, yet ophthalmologists see nothing wrong. Meet the 82-year-old doctor whose radical idea about the real source of this pain is turning heads."

    http://mosaicscience.com/story/severe-eye-pain
     
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  2. Effi

    Effi Senior Member

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    :jaw-drop::aghhh::depressed:
    They never learn, do they? ugh :bang-head:
     
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  3. sarah darwins

    sarah darwins I told you I was ill

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    Really interesting. It is a long article, so maybe it's okay if I quote a bit here for those who don't want to read the whole thing. It realtes to 'dry eye disease', which can be very nasty (I've had a taste of it).

     
  4. minkeygirl

    minkeygirl But I Look So Good.

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    I have dry eye syndrome but not to the point where I beee punctal plugs. At its worse it felt like gravel was in my eyes

    I learned you need to go to a specialist who understands DES, no just some doc. There is a forum for dry eyes which recommends doctors.

    I can't remember the name. Dry eye zone?
     
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  5. brenda

    brenda Senior Member

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    Yes that's it. It's the best forum for eye problems.

    I have dry eyes and get the pain that is described, and my gp is not interested and just handed me some ointment which is useless.

    The problem l have is that the dryness becomes severe overnight, and the slightest movement of the eyes on waking rips the top off the cornea and it is unbearable so much so that you are scared to go to sleep.

    I control it with a silk eye mask and natural drops without preservative which helps avoid long term extra damage.

    I guess l was so used to medical neglect regarding ME that a bit of extra disbelief was just another day.
     
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  6. Snowdrop

    Snowdrop Rebel without a biscuit

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    I use a gel at night and drops throughout the day.
    It amazes me now that I experience this how such a seemingly small thing can be so very uncomfortable.
    If I wake up in the night I often redose since I'm awake anyway.
    I've never even bothered to tell my GP.
    SIGH. I want this to be over.
     
    Last edited: Sep 18, 2015
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  7. alkt

    alkt Senior Member

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    unfortunately the stabbing pain in the eye is one of my m.e symptoms as well as less severe sensation of swollen dry and gritty eyes. luckily i only have to rest my eyes for symptoms to abate. and yes it would be the last straw if these symptoms were unremitting.
     
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  8. alkt

    alkt Senior Member

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    check your eye drops do not have the preservative mentioned in the article mentioned in the first post.. and may i ask if you get small blisters on the inside top of your eye lids they are really irritating to.
     
  9. Snowdrop

    Snowdrop Rebel without a biscuit

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    No to both Q's. Thank goodness. Small blisters doesn't sound too good.
     
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  10. anciendaze

    anciendaze Senior Member

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    There is a different condition which produces severe pain in the eye, optic neuritis. This has a strong association with MS, so that patients who have had such symptoms once are suspected of developing MS later, which affects insurance. Doctors tend to believe this one, because lesions on the optic nerve are large enough to show up on scans. There is also a classical sign of a damaged optic nerve which can be seen by looking in the eye, the place where the nerve connects to the retina changes color.

    Patients with definite evidence of a a lesion on the optic nerve, but without lesions in other parts of the brain, remain in a kind of limbo until their status changes. They aren't said to have true MS, but the risk of developing MS is substantially higher.
     
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