1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Hyperparathyroidism: An Often Overlooked Differential Diagnosis to ME/CFS
Andrew Gladman puts hyperparathyroidism under the microscope, exploring what the disease is, how it can mimic ME/CFS in presentation and how it is treated.
Discuss the article on the Forums.

Another Contest Vivant - to WIN Reseach Money!!

Discussion in 'Action Alerts and Advocacy' started by SpecialK82, May 19, 2011.

  1. Sasha

    Sasha Fine, thank you

    Messages:
    8,378
    Likes:
    7,451
    UK
    No worries - at least you're here now and in good time for Round 2 which starts on 14 June - that's when every single vote is really going to matter!
     
  2. Francelle

    Francelle Senior Member

    Messages:
    444
    Likes:
    15
    Victoria, Australia
    Thanks Sasha for clarifying about the signature. I know what signatures are for emails, so what you are explaining is for posted messages on forums??? I think I've got it now!

    Just a memory prompter that I have put in place for reminding me to vote each day is my microsoft office calendar. This reminder pops up everyday about 3pm 'til 11pm (at the times I am often on the computer) otherwise I would have no hope of remembering everyday. So far this has worked very well and I will do this for Round 2 also (all the more important)!
     
  3. Sasha

    Sasha Fine, thank you

    Messages:
    8,378
    Likes:
    7,451
    UK
    Hi Francelle - yes, that's exactly it, it's a signature for messages that you post on the forums, just like an email signature. I wondered for ages how people got their forum signatures before I figured it out!

    That's an excellent idea about using your computer's calendar. I will PM Cort to ask him if he might add it to any article he might be doing about Round 2! It sounds easier than signing up to a Facebook event (to me, at any rate!).
     
  4. shannah

    shannah Senior Member

    Messages:
    847
    Likes:
    178
    What's the recommendation for today?
     
  5. Dolphin

    Dolphin Senior Member

    Messages:
    6,816
    Likes:
    5,904
    For the reasons I give in this post: http://forums.phoenixrising.me/show...eseach-Money!!&p=185243&viewfull=1#post185243 , I'd go with Nightingale Research Foundation http://www.vivint.com/givesbackproject/charity/1129 (who, as I forecasted, have been passed out by Terrace 747 Air Cadet today pushing them into 18th, with a good chance they'll be knocked into 20th in a few days by a couple of groups who are making a move) .
     
  6. frenchtulip

    frenchtulip Senior Member

    Messages:
    539
    Likes:
    269
    The Nightingale Research Foundation is now in 19th position. They could sure use some votes.
     
  7. Dolphin

    Dolphin Senior Member

    Messages:
    6,816
    Likes:
    5,904
    Drat. Free the Children weren't even one of those I was expecting; they went up 8 yesterday to 25. In the last 14 hours, they got 36 votes. It shows when you're that low down the bottom, you're never safe.

    The National ME/FM Action Network supporters should probably keep trying to pick up votes (and supporters for Round 2 - not simply WPI supporters but "new new" supporters) on the off-chance there is a surge down the bottom. FWIW, I've adjusted my signature to move the National ME/FM Action Network out of the safe category.
     
  8. Dolphin

    Dolphin Senior Member

    Messages:
    6,816
    Likes:
    5,904
    Although the IACFS/ME International Association for CFS/ME has moved up in position, it probably isn't 100% safe e.g. it has gone up in the last 18 hours, by 58 but 21st position has gone up by 81 i.e. it's getting closer. It depends whether some of those it has just passed out start to make a spurt or not.
     
  9. Sasha

    Sasha Fine, thank you

    Messages:
    8,378
    Likes:
    7,451
    UK
    I'm still voting for them - they don't look safe to me and we've still got four voting days to go. I think they are more strategically important for research than many of the other charities and I'd rather have them safe (maybe that's just me, though!).
     
  10. Dolphin

    Dolphin Senior Member

    Messages:
    6,816
    Likes:
    5,904
    Good for you. To me, none* of the ME/CFS groups who are not in the top 20 now look like they have much of a hope of getting in there - not just based on the gap but based on the fact that 20th position has been going up much more than they have been getting so I think people should be voting for groups in the top 20 (although am even more convinced votes for the WPI are a waste at the moment with 3 days 9 hours to go).

    * one exception might be: MEAO (Myalgic Encephalomyelitis Association of Ontario) who have a grand total of 1 vote - any group could move up in Canada if it rallied some support.
     
  11. Sasha

    Sasha Fine, thank you

    Messages:
    8,378
    Likes:
    7,451
    UK
    I see what you mean about that! But it's good that people are really ingrained in that habit, in a way - more likely that they will keep it going for Round 2!

    Cort has agreed to mention Francelle's clever idea of getting MS Office Calendar to give people a daily voting prompt.
     
  12. Dolphin

    Dolphin Senior Member

    Messages:
    6,816
    Likes:
    5,904
    Oh, yes, give me somebody who votes for the WPI each day over somebody who only votes occasionally or hasn't so far. I was just putting my scale of where I thought votes/endorsements were most important at the moment.

    Great. For many of us who are on Facebook a bit more or at least check the e-mail account connected to Facebook, the event idea is also good: https://www.facebook.com/#!/event.php?eid=121179681298558 - just say you're "attending" the event. Good way to get other people to vote (by inviting them).

    Just saw on the discussions there that somebody didn't know it was daily voting. We probably keep needing to highlight that (although at the same time ideally explain people don't have to vote daily or it could potentially put a few people off).
     
  13. shannah

    shannah Senior Member

    Messages:
    847
    Likes:
    178
    I posted earlier today on their FB page that someone had nominated them and included voting information. So far there has been no further response or votes.
     
  14. Dolphin

    Dolphin Senior Member

    Messages:
    6,816
    Likes:
    5,904
    Well done for trying.
     
  15. frenchtulip

    frenchtulip Senior Member

    Messages:
    539
    Likes:
    269
    I see that PANDORA is asking their supporters to vote for Rocky Mountain.--very benevolent! Rocky Mountain needs roughly 180 votes to get into the top 20, so it may be hard to get enough votes for them.
     
  16. Dolphin

    Dolphin Senior Member

    Messages:
    6,816
    Likes:
    5,904
    It's the sort of initiative that could swing it for Rocky Mountain - they weren't going to get in without it.

    Marly just wrote on my wall asking me to spread it around.

    Here's the note on their Facebook page:

    https://www.facebook.com/permalink....-cfs-fm-association-instead-o/221759684510570
     
  17. Dolphin

    Dolphin Senior Member

    Messages:
    6,816
    Likes:
    5,904
    :Sign Good Job: Nightingale Research Foundation got 22 votes today to move it up to 17th with 70 votes, 21 votes ahead of 21st position. 22 votes a day for the next three days should probably be enough. Looking at the movements, there looks like there are 21 charities in the running i.e. if the Nightingale Research Foundation can pass out one of the ones above that are a bit sleepy/don't have many daily voters or some of the ones below it don't keep getting new voters, it is is a good position.
     
  18. Dolphin

    Dolphin Senior Member

    Messages:
    6,816
    Likes:
    5,904
    FWIW:
    On the last day, I think I won't use the three votes "I control" (incl. my bro and mum) until later in the day to see who needs them most.
     
  19. Dolphin

    Dolphin Senior Member

    Messages:
    6,816
    Likes:
    5,904
    Central in last 24 hours

    :eek:

    IACFS/ME International Association for Chronic Fatigue 624 + 71 = 695

    21st position: 429 + 116 = 546

    i.e. The gap closed by 45. Over 3 days that would mean closing by 105 (or over 3 days 3.5 hrs, 112). Currently the gap is 149 which mean the IACFS/ME would just make it.

    :eek:
     
  20. Dolphin

    Dolphin Senior Member

    Messages:
    6,816
    Likes:
    5,904
    Mountain over last 24 hours

    20th position: 397 + 52 = 449

    The Rocky Mountain CFS/ME & FM Association: 260 + 11 = 271

    So gap increased by 41 to 178. That means the gap would need to close by nearly 60 a day.

    If 20th position went up by 52 a day, the Rocky Mountain CFS/ME & FM Association would need to get around 110.

    If 20th position went up by 60 a day (assuming a bit of acceleration), the Rocky Mountain CFS/ME & FM Association would need to get around 120 votes a day. That would be tough even with PANDORA voters, unless other voters give up and swap e.g. CAA and/or decide their group has enough and swap e.g. WPI.
     

See more popular forum discussions.

Share This Page