1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Clark Ellis brings us a rare interview with British researcher Dr. Jonathan Kerr who is now living in Colombia.
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Another Contest Vivant - to WIN Reseach Money!!

Discussion in 'Action Alerts and Advocacy' started by SpecialK82, May 19, 2011.

  1. Sasha

    Sasha Fine, thank you

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    Bumping! Hope everyone has voted today! :D
     
  2. cfidsurfer

    cfidsurfer

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    Sarasota,FL/PA/NJ.
    WPI slips in ranking

    WPI is now in second place.
     
  3. Sasha

    Sasha Fine, thank you

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    Hi cfidsurfer - not an issue for this round, fortunately (WPI needs only be in the top 20 to go through to Round 2) but it's useful to know we'll have stiff competition in Round 2 when 1st place is all that matters.

    Everyone on Phoenix Rising should be getting themselves a Facebook account and voting daily if they haven't already - we need mass support to win but with that support it's very doable! Don't leave it to other people, folks! :D
     
  4. Dolphin

    Dolphin Senior Member

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    Sorry to nit pick but even if the WPI came second in its region in Round 2, it could still win $100,000 if the winner was from its region:
    I think it's worth re-iterating this now and again in case anybody things about giving up because Be Perfect Foundation is ahead.

    Also, as has been said, some WPI are endorsing other charities at the moment but will come back to the WPI in Round 2.
     
  5. Sasha

    Sasha Fine, thank you

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    Thanks, Dolphin - I'm really having trouble getting that into my skull!
     
  6. Dolphin

    Dolphin Senior Member

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    The corollary of this is that with a few days to go in Round 2, if Be Perfect Foundation is a long way ahead of the WPI, it could make sense to actually vote for it to try to ensure it gets first place overall, so that the WPI gets money for second place!!

    Anyway, I'm not giving up on the WPI yet.
     
  7. Sasha

    Sasha Fine, thank you

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    Weird! Weird! But I see what you mean! Let's hope it doesn't come to that...
     
  8. leela

    leela Slow But Hopeful

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    Oh god I've been so brain fogged I thought I could only *start* voting every day on June 11th! All my missed votes! I feel so stupid!
     
  9. Dolphin

    Dolphin Senior Member

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    The Nightingale Research Foundation +9 to 48
    Terrace 747 Air Cadet +26 to 46 - will pass out The Nightingale Research Foundation in tomorrow at this rate
    Muscular Dystrophy Canada +17 to 39 - will pass out The Nightingale Research Foundation in tomorrow in 2 days at this rate

    That will put The Nightingale Research Foundation in 19th and very vulnerable.

    A lot of the groups below it have got 8 to 10 votes having been static so they've obviously woken up.

    Saint John Regional Hospital Foundation went from 1 to 20 in one day. Who knows how many it will get tomorrow (possibly more than 19 if it just sent out a message) so it could move up quickly.

    Basically, vote-for-vote, I would think a vote is most valuable for The Nightingale Research Foundation in terms of helping to get a group for the illness into the top 20 I think.
     
  10. Dolphin

    Dolphin Senior Member

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    National ME/FM Action Network went up 23. That's a good sign that they've got some voters on board - they were going up in single figures for a lot of the days before that.
     
  11. cfs info

    cfs info

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    National votes are low as it is safe in the Canadian group for round 1. We are voting for others to try to get them into the top 20. You'll see a different voting pattern in round2. We'll be going all out to get them to win the Canada region.
     
  12. cfs info

    cfs info

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    Done - so can I can't on your vote now?
     
  13. Dolphin

    Dolphin Senior Member

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    Good to hear.
     
  14. helen41

    helen41 Senior Member

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    I nominated Nightingale, gave them some votes, and emailed them to let them know. They didn't respond. I don't know if they rely on donations or not. Exactly the same problem with Rocky Mountain.
    I'm rooting for WPI and ME/FM Action Network at this point, not necessarily in that order. If we are smart, we get both for $100,000. I'm worried people will chose to chase the Grand Prize of $250,000 (risky), when they could chase 2 prizes ($200,000), which seems very attainable. I really hope we don't aim so high that we end up losing.
     
  15. Dolphin

    Dolphin Senior Member

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    Bad news

    Be Perfect Foundation (pacific) went up 631 in one day.

    If one likes to think positive: they look like they could be favourites for Round 2. If they win overall, then 2nd in the pacific region would be good enough for the WPI to win $100,000.
     
  16. cfs info

    cfs info

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    As far I as know from reading the rules there is no money for second place. WPI must win the region.
     
  17. Dolphin

    Dolphin Senior Member

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    @National ME/FM Action Network Fans:
    You could consider setting up an event like the one the WPI has: https://www.facebook.com/#!/event.php?eid=121179681298558
    Then set it (I don't know the details) so it send out a reminder every day to vote.
    It's also a fairly easy way to ask your Facebook friends to join it - click "select guest to invite". You can also add in E-mail addresses (down the bottom) when inviting people.
     
  18. Dolphin

    Dolphin Senior Member

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    I quoted this from the rules just above that:
     
  19. Dolphin

    Dolphin Senior Member

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    Forgot to look: the WPI got 500 in 24 hours so that is also very good. Add in maybe 100-150 voters temporarily voting for other groups and it's going to be close with Be Perfect Foundation.

    By comparison - other groups that have more votes in total (because they started earlier presumably):
    Utah Prader-Willi Syndrome Association +320
    Foundation for Angelman Syndrome Therapeutics (FAST) +418
    Tapestries of Life Ministries: +308
    Childhood Apraxia of Speech Association of North America: +408
    CHERUBS: +439
     
  20. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

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    You appear to be in good shape. I will vote for you if needed.

    GG
     

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