The Call for Opposition: Challenging the P2P and IOM Processes
In our second article on how to react to the publication of the draft P2P report, Gabby Klein provides her view of why she and a large group of advocates and patients are continuing their protest of the government’s ongoing control and manipulation of our disease via their processes...
Discuss the article on the Forums.

Another blog with misinformation

Discussion in 'Media, Interviews, Blogs, Talks, Events about XMRV' started by Boule de feu, Apr 21, 2011.

  1. Boule de feu

    Boule de feu Senior Member

    Messages:
    1,115
    Likes:
    63
    Ottawa, Canada
    It really bothers me when I see this type of misinformation about ME/CFS.
    This one is by a medical student who wants to become a doctor.

    http://kennethkee.info/blog/family-...ly-doctors-tale-chronic-fatigue-syndrome.html

    We could leave a comment to let him know that what he is describing is CF not CFS?

    EDITED POST (APRIL 30, 2011) - This medical doctor was receptive to our comments and made the necessary changes. Thank you everyone for your input in this matter.

    http://kennethkee.info/blog/medical-case-studies/a-family-doctors-tale-chronic-fatigue-syndrome.html
     
  2. Tulip

    Tulip Guest

    Messages:
    437
    Likes:
    7
    Yes something needs to be said, I might say something.

    Unfortunately I think he is speaking for 99% of family doctors out there who also think that is what it is. How embarrassing for them, especially when a simple google search will reveal the true nature of what it really is...
     
  3. ixchelkali

    ixchelkali Senior Member

    Messages:
    1,105
    Likes:
    268
    Long Beach, CA
    I left him a friendly note referring him to the Canadian Consensus Guidelines and the Fukuda criteria. I thought I'd try education rather than bludgeoning, since he may well be just repeating what he was taught in med school. Maybe he'll be interested in learning something more accurate. Hope springs eternal. And if he isn't interested in learning what it really is, nothing we say is apt to change his mind.
     
  4. blacksnake

    blacksnake

    Messages:
    12
    Likes:
    1
    Melbourne Australia
  5. TinyT

    TinyT Senior Member

    Messages:
    149
    Likes:
    1
    Australia
    Where did he get his information from? Patients avoid socializing? WTF?!?!?

    Will try to add a comment too.
     
  6. TinyT

    TinyT Senior Member

    Messages:
    149
    Likes:
    1
    Australia
    Comment made:

     
  7. Tulip

    Tulip Guest

    Messages:
    437
    Likes:
    7
    Good post tinyt! I didn't end up making one, I was too cranky. I wonder if any of the comments will make the website?.
     
  8. TinyT

    TinyT Senior Member

    Messages:
    149
    Likes:
    1
    Australia
    Thanks Tuliip. I hope that some comments make the website. Or at least make 'the family doctor' think twice about the misinformation he is putting up.

    I got motivated tonight and also made two big comments to the ABC website re- their PACE trial interview. Hopefully I'll see them up soon too!
     
  9. Boule de feu

    Boule de feu Senior Member

    Messages:
    1,115
    Likes:
    63
    Ottawa, Canada
    Good job, TinyT!

    This is brilliant and right to the point.
    Thank you for helping me in this.
    What bothers me is that it is coming from a doctor. =-(
     
  10. Boule de feu

    Boule de feu Senior Member

    Messages:
    1,115
    Likes:
    63
    Ottawa, Canada
    Good thinking.
    I believe that giving him a friendly heads-up is the way to go. =-)
    We don't want him to become our enemy, for sure.
     
  11. TinyT

    TinyT Senior Member

    Messages:
    149
    Likes:
    1
    Australia
    No worries! Glad to help.

    It is a worry that this is coming from a doctor. I haven't seen any comments come up yet.
     
  12. Boule de feu

    Boule de feu Senior Member

    Messages:
    1,115
    Likes:
    63
    Ottawa, Canada
    Let's hope that this will make him revise his blog.
     
  13. Boule de feu

    Boule de feu Senior Member

    Messages:
    1,115
    Likes:
    63
    Ottawa, Canada
    NEW ! - NEW ! - NEW !

    WE DID IT! WE DID IT!
    He did apologize and agrees that our comments are true.
    CFS is not CF.

    We can make a difference. ONE DOCTOR or future doctor at a time! =-)

    Thank you everyone for this. It made my day.
     
  14. justinreilly

    justinreilly Stop the P2P! Adopt "ME" & CCC!

    Messages:
    2,491
    Likes:
    1,179
    NYC (& RI)
  15. Boule de feu

    Boule de feu Senior Member

    Messages:
    1,115
    Likes:
    63
    Ottawa, Canada
  16. WillowJ

    WillowJ Senior Member

    Messages:
    3,531
    Likes:
    3,867
    WA, USA
    good work!
     
  17. TinyT

    TinyT Senior Member

    Messages:
    149
    Likes:
    1
    Australia
    Yes! Go team!
     
  18. ixchelkali

    ixchelkali Senior Member

    Messages:
    1,105
    Likes:
    268
    Long Beach, CA
    Hmm, it seems to have reverted. Most of the comments, as well as the doctor's reply and corrections have disappeared, and it's back to its original version. Wonder what happened?
     
  19. Dainty

    Dainty Senior Member

    Messages:
    1,360
    Likes:
    551
    Washington State
    Woohooo! Great job, everyone! This really made my night.

    Is that true for the second link given?
     
  20. TinyT

    TinyT Senior Member

    Messages:
    149
    Likes:
    1
    Australia
    If you go to the website & do a search for 'chronic fatigue syndrome' it'll find the post with alterations and comments still there
     

See more popular forum discussions.

Share This Page