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A Little Poisoning Along the Road to ME/CFS
Looking at my symptoms, many of which are far less these days and some are gone, it would be easy to figure that I'd just been dealing with some heavy-duty menopausal issues.
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Another Bill Reeves research

Discussion in 'Latest ME/CFS Research' started by Kati, Dec 22, 2009.

  1. Kati

    Kati Patient in training

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    Recently there was Wichita-
    Now here is the latest research Bill Reeves contributed to:

    http://articles.icmcc.org/2009/12/2...tm_source=rss&utm_medium=rss&utm_campaign=rss

    Mr Reeves, people are congregating to check out the information you put up on the website, BUT have you ever wondered if it's the right information?
    Are you aware of the impact of putting wrongful information on a highly visited website? Oh, of course you know. :mad:

    What a waste of tax dollars that could be spent on the taking care of those that have been in bed for 20-30 years because of your department.
     
  2. shrewsbury

    shrewsbury member

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    "Web Usage Data as a Means of Evaluating Public Health Messaging and Outreach"

    Agreed Kati - Reeve's latest is relevant and earth-shattering!

    "Web Usage Data as a Means of Evaluating Public Health Messaging and Outreach"

     
  3. CBS

    CBS Senior Member

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    Western US
    Why I have gone to

    I'd like to help the CDC get off on the right foot with understanding those who visit the CDC site.

    I have checked the CDC site numerous times. My goals are two keep abreast of two things:

    1) Has the CDC acknowledge the possibility that XMRV has been associated with CFS (and that validation research is currently underway) and that there are possible concerns over the blood supply (CFS patients ought to abstain from donating for the time being),

    and

    2) Has Bill Reeves been fired.


    Do I go there looking for any serious information to help with CFS? Are you kidding? And until these two things happen the CDC will never have any credibility.

    I wonder if Reeves will put that in his next paper?
     
  4. Kati

    Kati Patient in training

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    I would believe there are 3 different groups of people visiting the CDC ME/CFS website:

    Health care professionals that don't know any better and looking for info about ME/CFS

    Patients that don't know any better and looking for info about ME/CFS

    Patients that know how CRIMINAL the CDC has been for the last 25 years and considering a CLASS ACTION against the CDC for researching, amongst other things, TRIVIAL things like how many people visit their website. :mad:

    ETA and worse of it all getting published about it
     
  5. fresh_eyes

    fresh_eyes happy to be here

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    mountains of north carolina
    Sh*t! Just today I went to their web site a bunch of times to critique their awful "CFS Toolkit" - and he's managing to spin that to benefit him?!
     

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