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Annette Whittemore on Nevada Newsmakers

Discussion in 'Media, Interviews, Blogs, Talks, Events about XMRV' started by Jemal, Jun 21, 2011.

  1. Jemal

    Jemal Senior Member

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  2. Jemal

    Jemal Senior Member

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    This is a great talk! She's talking about human antibodies now.

    We knew that, but good to hear her say that.

    Talking about politics:

    About the CDC:

  3. Sing

    Sing Senior Member

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    Thanks! Just listened and feel encouraged by Annette Whittemore's overview and perspective. She emphasized that they are looking forward to having the chance to speak with Ian Lipkin PRIVATELY on June 24 and to show him their lab. Makes me feel good too.
  4. eric_s

    eric_s Senior Member

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    Switzerland/Spain (Valencia)
    It's crazy that this has not happened yet... This should happen within one week or so after a serious study that reports an association of a new virus with a disease that affects a million citizens, shouldn't it?! A plane ticket is not so expensive after all.
  5. Jemal

    Jemal Senior Member

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    Just guessing here: the CDC and ME/CFS don't have a happy history. Then comes along this small laboratory that just started and they throw the field wide open. The CDC is an enormous organisation, with enormous funds and potential. They probably thought they should be able to find this virus themselves. Like many of the researchers who have done negative studies. This is part arrogance, but also the scientific thing to do I guess: they should be able to replicate the results (but obviously they haven't been able to, although now that the HIV department is getting involved, the CDC is at least getting some results).

    I agree though with your statement that with something this serious, the CDC should have been all over the WPI, copying their methods (and then decide if it's contamination).
  6. Enid

    Enid Senior Member

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    From this distance it is quite clear the WPI despite all the current infighting in ME/CFS - they and their colleagues stand only to unravel. Lesser people could not.
  7. Sing

    Sing Senior Member

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    New England
    Imagine a big police dept or govt dept like the CIA or FBI, charged with protecting public safety, and some unknown small fry comes along and says, "I think I found a mass murderer/terrorist." They will brush this off while they are following their own thinking and leads, because what does that small fry know anyway? Only certain people are credited with being able to identify and find the bad guy, while the others are ignored or discredited.
  8. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    NYC (& RI)
    With the DeFreitas retrovirus, CDC had trouble, of course, finding that virus. DeFreitas invited them to come to Philly to work in their lab with them and CDC asked her to pay their airfare because there was not enough money in CDC's CFS budget (only because it was all being misappropriated to other diseases). If I remember right she eventually relented and offered to either pay their airfare or come to CDC's labs on her own dime and she was then refused. CDC also claimed they didn't have enough money to pay for samples to come again from Miami after they destroyed the first ones by not following DeFreitas' explicit warnings. Ed Taylor, an ME patient's husband had to give $15K to CDC out of his own pocket to ship them again! So, this is SOP for CDC re ME.
  9. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

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    Concord, NH
    Our gov't at "work"!

    GG
  10. eric_s

    eric_s Senior Member

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    Yeah, and our govt's are working like this zzzzZZZZZzzzZZZZZ :rolleyes:
  11. Sing

    Sing Senior Member

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    Justin, What a shocking story! Was it from that book she wrote--I never read it because I didn't want to read the bad news.
  12. caledonia

    caledonia

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    Those are more details about DeFrietas than I remember from Osler's Web.

    Also good news that WPI is working on diagnostic tests derived from biomarkers of XMRV.
  13. Sing

    Sing Senior Member

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    Yes, and looking for those aspects of XMRV infection which can't be the result of any contamination--such as antibodies to XMRV. There are other such signs, but the technicalities can quickly overwhelm my comprehension.
  14. Cort

    Cort Phoenix Rising Founder

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    Annette looked very confident..with positive new studies coming out and some other answers it looks like we're in for some interesting months.
  15. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    Yes, from Osler's Web. I highly recommend it; my favorite book of all time. I felt much better after reading it just knowing how all of this happened, ie why people and doctors think we are nuts- ie because CDC and NIH has been consistently lying about us for the last 25+ years. But, yes it is a long book and makes one angry.

    The interview of Annette makes me happy! Good news!
  16. floydguy

    floydguy Senior Member

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    Yet NIH/CDC is probably flying Stoye in from London - most likely first/business class - on our dime. I guess the slush fund isn't available for making scientific progress only for deception.

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