1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
Discuss the article on the Forums.

Annete Whittemore on the current state of affairs and contamination issues

Discussion in 'Media, Interviews, Blogs, Talks, Events about XMRV' started by Jemal, Jan 5, 2011.

  1. Jemal

    Jemal Senior Member

    Messages:
    1,031
    Likes:
    60
  2. free at last

    free at last Senior Member

    Messages:
    508
    Likes:
    64
    Thanks Jemal, i havent read that yet, so it encouraging to see how sure they are that they might be on the right track still. I have recently just suffered my worst crash for sometime, after generally reasonable health, Inflamation is a big part of this, with muscle pain and cramping sensations while at rest. bone aching just like flu, but no cough no temperature, no one in my house has flu, and i havent been out, its the cfs for sure. immune dysfuntion is a big part that features strongly,as the poisend flu feelings ( even after long periods of seeming remission ) the weakness and effect on the brain are nothing short of complete immune dysfunction,im still convinced its cytokin poisening effects, after i did mild exercise.I still believe xmrv answers the possible reasons for these symptoms after 16 years, and the wpi should be supported, even more now, after this british smear campaign has tried to kill the xmrv connection.Please everyone lets continue to support the wpi, especially at these times when they are the least popular. They supported us when we were not popular, We should do the same, they are our greatest allie we have ever had. It just has to be a retrovirus it fits my life to damm well. others that have these symptoms, and are xmrv + i feel are also suffering inflamation and immune dysfunction. Dont let the British mess with our heads and get us thinking the wpi are wrong, like morpheus i belive, because i have to. and the glove fits
    Thanks Jemal
  3. guest

    guest Guest

    Messages:
    320
    Likes:
    5
    A great letter, thanks for posting it.
  4. Cort

    Cort Phoenix Rising Founder

    Messages:
    7,025
    Likes:
    435
    Raleigh, NC
    A very strong letter from Annette to start off the New Year.
  5. Cort

    Cort Phoenix Rising Founder

    Messages:
    7,025
    Likes:
    435
    Raleigh, NC
    That was a strong statement at the end about XMRV underlying neuro-immune diseases and untold cancers....They are not backing away from their vision of XMRV as being the puppet master at all.....which suggests that things are going well in the lab s at the WPI, NCI and Cleveland Clinic.
  6. Recovery Soon

    Recovery Soon Senior Member

    Messages:
    380
    Likes:
    37
    I'm not sure she was directly implicating XMRV as a causative agent yet- but that other retroviruses are.

    "Human retroviruses, such as HIV and HTLV-1, are causative for immune deficiencies, neurological disease and cancer."
  7. Esther12

    Esther12 Senior Member

    Messages:
    5,172
    Likes:
    5,151
    I don't know. I was assuming that the WPI's strong statements meant they were about to release killer new evidence a year ago. As time has passed without anything amazing being released I've come to just think of it as their way. (It could be things are going wonderfully behind the scences and it just takes a while to get things published... but I'm less comfortable assuming that than I was a year ago).
  8. Wayne

    Wayne Senior Member

    Messages:
    2,188
    Likes:
    1,261
    Ashland, Oregon
    Thanks for posting this Jemal. I thought WPI's response was great, and very credible (unlike some of the recent ridiculous commentary on the four retrovirology publications).

    Wayne
  9. Enid

    Enid Senior Member

    Messages:
    3,309
    Likes:
    840
    UK
    Most encouraging - thanks for posting. Especially enjoyed the terms "most experienced scientists" and the reverse "creators of sensational headlines" Think we all know the WPI is the real thing.

See more popular forum discussions.

Share This Page