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ANECDOTAL REPORT: de Meirleir's patients POSITIVE for XMRV

Discussion in 'Media, Interviews, Blogs, Talks, Events about XMRV' started by parvofighter, Dec 19, 2009.

  1. parvofighter

    parvofighter Senior Member

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    NB: This is an UNCONFIRMED ANECDOTAL REPORT, translated from Norwegian @ http://translate.google.ca/translat...arch?q=xmrv&hl=en&lr=&tbo=p&num=100&tbs=qdr:d

    "18.12.09 Kenny De Meirleir confirms XMRV-finding in ME patients
    After WPI published his groundbreaking research news October 8 this year, Kenny De Meirleir tested several of his patients. He has spent labratorier in several countries scroll. The patients were tested to map the incidence of XMRV and labratorienes ability to find the virus. Now he has confirmed that the virus is found in a majority of test persons and that they will get a letter about this along with updated treatment plan.

    This post is written based only on verbal information, so unfortunately I have no links to refer to. It is of course possible that some information has been misunderstood or misinterpreted in the communication process, but I want to clarify that I have had very reliable sources."


    PS: Puhleez don't give me grief about posting this!:p As with any anecdotal report, the proof is in the pudding. We have to wait for the fat lady to sing before we can get really excited about this. Don't dance a jig yet. Buyer beware. :DDisclaimers aside now, I'll be interested to see the chatter on that blog in the coming weeks, and whether Prof de Meirleir will be officially confirming this news. Anyone have an inside scoop on this news?
     
  2. cfs since 1998

    cfs since 1998 *****

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    Thanks for posting! I am also glad Dr. De Meirleir is investigating this rather than being too focused on his pet theory (hydrogen sulfide).
     
  3. Alice Band

    Alice Band PWME - ME by Ramsay

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    One of the Belgium groups was also talking about this. Guessing that he was sending to the Swedish Professor who had developed his own XMRV test and that it cost Euro 400.
     
  4. Carla-nl

    Carla-nl Veteran by now

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    We are getting close to some official information, it will be available next week.

    Best wishes,
    Carla

    www.diagnosesupport.com
     
  5. Quilp

    Quilp Senior Member

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    Even if the tests are confirmed, 'several' would mean very little surely ( unless you are one of those several of course )

    When I first read your thread a fast flowing river of happiness ran through my body like a surge of electricty. The hairs on the back of my head stood on end and for a fleeting, transient moment I was taken back to the 8th October 2009. Yes I know, desperation plays tricks with all our emotions, like a wild cat with a timid mouse. Perspective, perspective, reasoning, healthy scepticism, burden of proof satisfied thereof.......

    All very sensible, but even now, although not a fast flowing river, I sail slowly but freely on slow moving waters.

    I dare say Wessely, White and Sharpe would feed freely and with insatiable voracity on diets I sometimes serve on here. That maybe so, but what more can a timid mouse do ?

    Keeping fighting Parvo and thank you for keeping us informed.

    Kind regards, Mark
     
  6. Hysterical Woman

    Hysterical Woman Senior Member

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    De Meirleir's patients-parvofighter


    Hi Parvofighter,

    I appreciate you posting this. Hopefully someone will be able to confirm or deny in the not too distant future.

    As you recommend, I am not yet dancing a jig, but I am considering buying a ticket to hear the fat lady sing.

    Thanks,

    Maxine
     
  7. sunshine722

    sunshine722

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    I heard same of cheney pts.
     
  8. Wayne

    Wayne Senior Member

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    Excellent Disclaimers!

    Hi Parvofighter,

    Thanks for sending this information along. Sure got my attention here this morning. And BTW, excellent disclaimers! :)

    Wayne
     
  9. Katie

    Katie Guest


    Can you elaborate on this? Who, where, what? Is the link to where the information will be?

    Thanks.
     
  10. George

    George Guest

    Perked me right up!

    Great disclaimers! Thanks for posting it's another drop in the hope bucket.
     
  11. Katie

    Katie Guest


    Never has a bucket sounded so wonderful!
     
  12. Koan

    Koan Be the change.

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    [​IMG]

    Dancing is happening ~ can't be helped!
     
  13. bullybeef

    bullybeef Senior Member

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    There are probably so many studies happening as we speak, I'd like to think many different countries and research institutions will start making announcements from the New Year onwards.
     
  14. misskoji

    misskoji Guest

    Thank you, Parvofighter. Great find. Even better disclaimers. :D
     
  15. Martlet

    Martlet Senior Member

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    I laughed so hard at those disclaimers. Thanks Parvofighter - for them and for the information. I'll be watching with interest.
     
  16. parvofighter

    parvofighter Senior Member

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    Covering my a___!

    I'm basically just a little chicken-sh__, and was covering my a__ with those disclaimers! Seriously though, I'm a blog virgin (this is my first ever! :eek:), had no idea how to post, and have had some gentle and not-so-gentle feedback to be totally transparent about sources, particularly when they are potentially dubious or downright flaky. It's good advice.

    But then the perverse side of my nature came out, and I just had to have a lil' fun.:D
     
  17. Martlet

    Martlet Senior Member

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    I would never have guessed that you're a novice. I enjoy your posts. But sources/disclaimers are always a good idea.
     
  18. Mark

    Mark Acting CEO

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    Lol yes I've been practicing my jig, just in case!

    5 minutes on 5 minutes off remember!
     
  19. CBS

    CBS Senior Member

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    Thanks Koan

    Hi Koan,

    I absolutely love the pic!!!!!

    Thanks,

    Shane
     
  20. Marylib

    Marylib Senior Member

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    Is that a XMRV mouse?

    Did that little micie dance into our blood??

    Love his little jig.

    I am thinking that Dr. Mikovits will have alot to tell us on the chat in January. Hope so.
     

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