Invisible Illness Awareness Week 2016: Our Voices Need to Be Heard
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Andrea Whittemore's call to action

Discussion in 'Action Alerts and Advocacy' started by leelaplay, Nov 10, 2009.

  1. leelaplay

    leelaplay member

    Andrea Whittemore-Goad's call to action

    Anne posted this from Andrea W-Gs Facebook page :

    weldman/maxine is my current hero as she's trying to send off one letter a week - a very ME/CFS approach to doing things.

    Andrea's plea is helping get me going to emulate maxine. I thought it had great ideas for our individual advocacy efforts, and thought it should be posted here as well. (I added spacing and bolds). While it is directed at the US somewhat, the rest of us can translate it to address the appropriate people, departments and agencies in our own countries.

    And Aftermath reminds us:

    wildaisy kindly provided some links and addresses to write to

  2. Hysterical Woman

    Hysterical Woman Senior Member

    East Coast
    Thank You!

    Wow - what an incredible compliment and Birthday Present. This is actually embarrassing. I will continue to hold to my once a week letter regarding CFS, concentrating on the suggested content and where to send them as posted by islandfin.

    However, we all know who the real heroes are. They are the scientists who are committed to doing their work in a professional and conscientious manner! Standing there with them are the heroes who have had this illness for years (sometimes decades), and to the newly diagnosed who are struggling to figure out why a load of bricks just fell on them. The heroes are the patients who have been told (sometimes over and over) that they are crazy/lazy/psychotic/etc (fill in the blank) by doctors/family members/spouses/employers (fill in the blank).

    Let's hope that there are brighter days for all of us.



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