ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
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And again! Tell Congress & the President to Cancel the IOM Contract

Discussion in 'Institute of Medicine (IOM) Government Contract' started by Ember, Oct 20, 2013.

  1. Ember

    Ember Senior Member

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    Urgent ME Advocacy Action: Ask Congress and the President to Cancel IOM Contract and Adopt CCC!

    October 20, 2013
    “Twenty Years and Counting” gives instructions:

    For U.S. residents only;

    For everybody - U.S. and international members of the community!
     
    justinreilly and Delia like this.
  2. Delia

    Delia Senior Member

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    Iowa
    quote="Ember, post: 396934, member: 1749"]Urgent ME Advocacy Action: Ask Congress and the President to Cancel IOM Contract and Adopt CCC!

    October 20, 2013

    “Twenty Years and Counting” gives instructions:

    For U.S. residents only;

    For everybody - U.S. and international members of the community!
    [/quote]

    No, I've done all that.

    My question was specifically about the suggestions to make complaints to the Inspector General as an additional avenue of resistance to the IOM contract.

    But thanks!

    :)
     
  3. Ember

    Ember Senior Member

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    Your question wasn't addressed to me.[​IMG]o_O
     
    Delia likes this.
  4. Delia

    Delia Senior Member

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    Iowa

    D'oh. I got threads mixed up! Sorry!
     
    Ember likes this.
  5. Liz Willow

    Liz Willow

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    This is an updated and more focused campaign than the previous one. Please do check it out!
     
    Delia and Ember like this.
  6. Delia

    Delia Senior Member

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    Iowa
    Done! Thanks so much!
     
  7. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    NYC (& RI)
    Thanks!

    The link for the PCAST isn't great. Here's the PCAST email: pcast@ostp.gov

    I have emailed and will call all 9 of my members of congress again (lived part time in 3 states), PCAST, Obama and Biden.
     
  8. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    NYC (& RI)
    Here is the webpage to contact both Obama and Biden:
    http://www.whitehouse.gov/contact

    I have modified the sample letter for sending to Obama and Biden (as opposed to Congress)

     
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  9. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    NYC (& RI)
    Here is the letter rephrased for sending to PCAST, pcast@ostp.gov

     
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  10. Liz Willow

    Liz Willow

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    Delia and Ember like this.
  11. Andrew

    Andrew Senior Member

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    Los Angeles, USA
    Thank you!!
     

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