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Analysis of carers' narratives from 'Lost Voices from a Hidden Illness' in J. Health Psychol.

Discussion in 'Latest ME/CFS Research' started by Sasha, Jun 13, 2015.

  1. Sasha

    Sasha Fine, thank you

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    Saw this on IiME FB:

    http://www.ncbi.nlm.nih.gov/pubmed/26063209

     
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  2. Denise

    Denise Senior Member

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    I would very much like to read this!
     
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  3. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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    It looks good, but not $33 good. I think I'll buy the book and do my own analysis.
     
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  4. Sasha

    Sasha Fine, thank you

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    My bad - I didn't read this properly and thought they meant the film! I've edited my title.

    It's available direct from Invest in ME. Here's some info about it:

    http://www.investinme.org/LostVoicesBook/IiME Lost Voices Comments.htm

    and the order page:

    http://www.investinme.org/LostVoicesBook/Order.htm
     
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  5. Bob

    Bob

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    I got confused too. For clarification, 'Lost Voices' is a book (made in association with Invest in ME). And not related to this thread, but the reason we're getting confused, 'Voices from the Shadows' is a film (also made in association with Invest in ME). The book and film are related in some way but I can't remember how exactly. I think the book was made before the film, and was the inspiration or precursor for the film.
     
    Last edited: Jun 14, 2015
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  6. Bob

    Bob

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    I've just noticed that they managed to get funding from the NIAID for this study. But I can't imagine that it was an expensive study or large outlay for the NIAID, so perhaps it's a case of the NIAID paying lip service to ME? Or is it a sign of things to come (he asks with tongue firmly planted in cheek)?

    http://m.hpq.sagepub.com/content/early/2015/06/09/1359105315587137
     
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  7. Dolphin

    Dolphin Senior Member

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    I just read this. It's a sympathetic review of what the carers/caregivers said. There's no blaming of patients or carers/caregivers. (This isn't surprising given it comes from Leonard Jason's team).

    I haven't read the original book so can't make a comparison.
     
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