Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Analysis of carers' narratives from 'Lost Voices from a Hidden Illness' in J. Health Psychol.

Discussion in 'Latest ME/CFS Research' started by Sasha, Jun 13, 2015.

  1. Sasha

    Sasha Fine, thank you

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    Saw this on IiME FB:

    http://www.ncbi.nlm.nih.gov/pubmed/26063209

     
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  2. Denise

    Denise Senior Member

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    I would very much like to read this!
     
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  3. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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    It looks good, but not $33 good. I think I'll buy the book and do my own analysis.
     
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  4. Sasha

    Sasha Fine, thank you

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    My bad - I didn't read this properly and thought they meant the film! I've edited my title.

    It's available direct from Invest in ME. Here's some info about it:

    http://www.investinme.org/LostVoicesBook/IiME Lost Voices Comments.htm

    and the order page:

    http://www.investinme.org/LostVoicesBook/Order.htm
     
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  5. Bob

    Bob

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    I got confused too. For clarification, 'Lost Voices' is a book (made in association with Invest in ME). And not related to this thread, but the reason we're getting confused, 'Voices from the Shadows' is a film (also made in association with Invest in ME). The book and film are related in some way but I can't remember how exactly. I think the book was made before the film, and was the inspiration or precursor for the film.
     
    Last edited: Jun 14, 2015
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  6. Bob

    Bob

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    I've just noticed that they managed to get funding from the NIAID for this study. But I can't imagine that it was an expensive study or large outlay for the NIAID, so perhaps it's a case of the NIAID paying lip service to ME? Or is it a sign of things to come (he asks with tongue firmly planted in cheek)?

    http://m.hpq.sagepub.com/content/early/2015/06/09/1359105315587137
     
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  7. Dolphin

    Dolphin Senior Member

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    I just read this. It's a sympathetic review of what the carers/caregivers said. There's no blaming of patients or carers/caregivers. (This isn't surprising given it comes from Leonard Jason's team).

    I haven't read the original book so can't make a comparison.
     
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