Julie Rehmeyer's 'Through the Shadowlands'
Writer Never Give Up talks about Julie Rehmeyer's new book "Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand" and shares an interview with Julie ...
Discuss the article on the Forums.

an update

Discussion in 'General ME/CFS Discussion' started by littlebird6180, Apr 3, 2017.

  1. littlebird6180

    littlebird6180 Senior Member

    Messages:
    118
    Likes:
    199
    I just wanted to give an update here because I find I tend to come here during my worst times for help and I wanted to make sure I shared my "best" with you as well.

    I got some incredible advice here and it helped pull me out of one of the worst crashes I've had - the advice combined with help from my doctor.

    In short, I was doing really well until christmas when I experienced one of the worst crashes ever.

    A month ago, I decided to go off of just about everything. I stopped taking fludrocortisone, salt pills, rhodiola, b12 injections. I stayed on atenolol, LDN, ketotifen.

    I felt a bit better after going off everything and I think essentially I've determined the fludrocortisone and salt pills were having bad side effects for me.

    What really changed everything for me though was the decision to pulse my b vitamins. So now I alternate the following in 3 day cycles: folinic acid, L-MTH-5 and niacin. This way, my body doesn't get used to them and they have the same incredible energy rush that they do the first day. So I've been feeling really strong energy, mental clarity, no more depression, no body/muscle aches and just all in all, I feel like I can keep up with my kids. This has been huge. I have no idea if it will last but I wanted to document while I'm feeling good.

    Thanks for everyone's help.
     
  2. Basilico

    Basilico Florida

    Messages:
    917
    Likes:
    2,085
    Glad to hear you're feeling better!
     
    Mary and Hutan like this.
  3. jason30

    jason30 Senior Member

    Messages:
    239
    Likes:
    94
    The Netherlands
    Good news!
     
    Mary and Hutan like this.
  4. belize44

    belize44 Senior Member

    Messages:
    923
    Likes:
    2,173
    That's great news! I hope it lasts a long time.:)
     
    Mary and Hutan like this.
  5. Mary

    Mary Senior Member

    Messages:
    2,977
    Likes:
    6,817
    Southern California
    ahimsa likes this.
  6. Johnskip

    Johnskip Senior Member

    Messages:
    141
    Likes:
    92
    Nice to hear good luck!
     
  7. Shoshana

    Shoshana Northern USA

    Messages:
    2,062
    Likes:
    6,106
    Northern USA
    Thanks for telling us!
     
  8. maybe some day

    maybe some day Senior Member

    Messages:
    312
    Likes:
    1,308
    San Francisco bay area
    Nice to hear! I wish it was something simple as that for me :0(
     
  9. Gingergrrl

    Gingergrrl Senior Member

    Messages:
    10,199
    Likes:
    29,141
    USA
    Are these two different types of Folate or Folic Acid? I am doing well with Methyl B-12 now but trying to find a type of Folate that I tolerate. Are you taking two different types of Folate or am I totally confused?!!

    And am so glad you found something that is working for you!
     
  10. lafarfelue

    lafarfelue Senior Member

    Messages:
    157
    Likes:
    523
    Australia
    Hooray, this is great! I hope it continues for a good long while for you. :thumbsup:
     
    Izola likes this.

See more popular forum discussions.

Share This Page