Looking Ahead to Change: Little by Little
I don't make New Year's Resolutions. I don't think I ever really did, but the last decade or two would have been enough to stifle that impulse. I've just been too aware that I don't have that much control over what happens in my life.
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An Update on ME/CFS Research with Ronald W. Davis, PhD

Discussion in 'Latest ME/CFS Research' started by Ben Howell, Feb 21, 2017.

  1. Grigor

    Grigor Senior Member

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    +1. Sounds exciting though.
     
    MEMum, barbc56, Ben Howell and 4 others like this.
  2. A.B.

    A.B. Senior Member

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    I am donating what I can.

    Does advocay have the potential to get the NIH to fund this project specifically and generously?
     
    Rose49, Laelia, Binkie4 and 14 others like this.
  3. Wolfiness

    Wolfiness Activity Level 0

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    Solstice, barbc56, Izola and 2 others like this.
  4. Nickster

    Nickster

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    I am so incredibly thankful for all of Ron and his team's research and work. This brings me to tears on how far they have come and may actually find a cure soon. I feel there is a bit of hope for my bedridden 25 year old son suffering with me/cfs and all of the other sufferers and their families. I will be donating.

    Thank you for being our angels in this crazy journey of illness and give us the light of hope!
     
    GodGenghis, MEMum, keenly and 21 others like this.
  5. Cheesus

    Cheesus Senior Member

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    Transcribing a video is much more energy intensive than I had envisioned :ill: I have nevertheless finished.

    I am going to forward the transcript to Pat and Grigor now. If anyone else wants a copy, let me know.

    EDIT: I've just realised I can actually just upload it here. Anyone can share or use this document however they wish. You do not need to ask my permission.
     

    Attached Files:

    Last edited: Feb 22, 2017
    ArunP, frozen, zzz and 86 others like this.
  6. daisybell

    daisybell Senior Member

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    Thank you again to Ron and all the team... will donate again!
     
    Cohen2, Solstice, barbc56 and 11 others like this.
  7. Kati

    Kati Patient in training

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    Thanks @Cheesus and I concur, it is a spoon-robbing exercise to transcribe or do any kind of mental exercise. Please call it a day and rest until tomorrow.
     
    ArunP, GodGenghis, sue la-la and 13 others like this.
  8. Cheesus

    Cheesus Senior Member

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    My spoons are all out - it was more my poor fingers and arms than my brain.

    I will take your advice and shut myself down now. Going to lie quietly and meditate :)
     
    sue la-la, dannybex, MEMum and 23 others like this.
  9. AshleyHalcyoneH

    AshleyHalcyoneH Open Medicine Foundation

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    This video is posted on OMF's facebook as well as the CFS research Center's and is facebook shareable/likeable from them!
     
    Binkie4, Solstice, RL_sparky and 16 others like this.
  10. Wolfiness

    Wolfiness Activity Level 0

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    Thanks @Cheesus

    "Serum" means blood, right?
     
    Lily Valley likes this.
  11. Rose49

    Rose49 Senior Member

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    Basically it's what's left after you take out the blood cells.
     
    sue la-la, Valentijn, MEMum and 18 others like this.
  12. Comet

    Comet I'm Not Imaginary

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    Thank you so much to Ron and everyone who is working so hard on this for us. So validating, inspiring and hopeful! :angel:

    Just made another donation.
     
    GodGenghis, MEMum, Solstice and 14 others like this.
  13. Kati

    Kati Patient in training

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    Funny how we are each slightly different in the symptoms we get. For me, my brain would complain long before my fingers and arms. And it would be worse if I tried to do cognitive work vertically as opposed to horizontal.
     
    GodGenghis, picante, MEMum and 12 others like this.
  14. Cheesus

    Cheesus Senior Member

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    I would have agreed with you in the past, but last summer I started on low dose naltrexone. I was and still am completely bedridden, but with the LDN my mental stamina went from that of a very severe patient to that of a mild to moderate patient. However my physical stamina only improved a little bit.

    So when I said I am going to lie down, I really meant figuratively, because I am actually still bedridden and so was already lying down :p

    ... I should really be resting.
     
    ivorin, frozen, GodGenghis and 31 others like this.
  15. TigerLilea

    TigerLilea Senior Member

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    This does sound very encouraging. Many thanks to Ron Davis for all of his hard work and dedication. And to Cheesus for typing up the transcript. :thumbsup:
     
    GodGenghis, Cohen2, rosa and 14 others like this.
  16. Tuha

    Tuha Senior Member

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    When I was younger I didnt want to confess that many things are about money but they are. :-(
    Now I would marry an old billionaire to move ME research faster. Thanks for all your great job. We are following you also from middle of Europe with our small ME/CFS group - hoping that maybe some help will also come to this forgotten part of the world where nobody from medical community knows anything about ME/CFS. Greeting and sending some small money from Slovakia.
     
    Vojta, ivorin, frozen and 42 others like this.
  17. justy

    justy Senior Member

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    I have my questions in!

    Thanks so much, again, to Ron and the whole team. I thought he looked overworked and tired - don't want him burning himself out and not being able to finish his work, or enjoy his own life. Please take care.
     
    ghosalb, sue la-la, picante and 24 others like this.
  18. Ben Howell

    Ben Howell OMF Correspondent

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    Please if you can, do this guys :)

    Also would like to thank Ashley for her massive effort in making this video and all her work editing. Awesome stuff!


    B
     
    frozen, GodGenghis, ghosalb and 27 others like this.
  19. Grigor

    Grigor Senior Member

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    Wonder if topical or injections of ATP would work.
     
    MEMum likes this.
  20. TreePerson

    TreePerson

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    The marrying a billionaire is an excellent idea. LOL. I am now actively on the lookout! Meanwhile I have made a small donation.:) Xx
     
    GodGenghis, ghosalb, Sea and 21 others like this.

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