Lipkin's Monster ME/CFS Study: Microbes, Immunity & Big Data
The Microbe Discovery Project outlines an ambitious new study by top researchers that has collected patient samples, but needs desperately funds to complete the work.
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An unblinded trial such as PACE simply does not provide useful information

Discussion in 'General ME/CFS News' started by Ember, Jan 19, 2015.

  1. Ember

    Ember Senior Member

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    Prof Edwards: an unblinded trial such as PACE simply does not provide useful information

    Monday, January 19, 2015

    “The patients are very aware of the weaknesses of the study and I am surprised that those designing the study are not equally aware.”
     
  2. Bob

    Bob

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    Last edited: Jan 20, 2015
  3. Bob

    Bob

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  4. Bob

    Bob

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  5. eafw

    eafw Senior Member

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    Thanks Bob, nice to have these links in one place.

    A note to anyone not aware: you can read and "like" comments on the bmj rapid responses without any need for a sign in - good to show support for the authors of these comments.
     
    Wildcat, Nielk and Bob like this.
  6. Bob

    Bob

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  7. Bob

    Bob

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    BurnA, Research 1st, Wildcat and 5 others like this.
  8. WillowJ

    WillowJ คภภเє ɠรค๓թєl

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    Thanks to everyone who found the energy and concentration to comment! :thumbsup:
     
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  9. Ember

    Ember Senior Member

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    Also...

    Margaret Williams
    24 January 2015

    “The day is surely approaching when it will be conclusively shown that the psychosocial lobby have spent their ME/CFS careers in a 'null field.'”
     
    Research 1st, Bob and Wildcat like this.
  10. Dolphin

    Dolphin Senior Member

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    (In case anyone missed it)
    The journalist, David Tuller DrPH, has today posted a substantial piece on the PACE Trial:

    TRIAL BY ERROR: The Troubling Case of the PACE Chronic Fatigue Syndrome Study
    http://www.virology.ws/2015/10/21/trial-by-error-i/

    There's an introduction and summary at the start if you don't want to take on the whole thing.

    It's being discussed in this PR thread:
    http://forums.phoenixrising.me/inde...he-pace-chronic-fatigue-syndrome-study.40664/

    ME Network have also posted their own summary piece:
    http://www.meaction.net/2015/10/21/david-tuller-tears-apart-pace-trial/
     
    Valentijn and alex3619 like this.
  11. Research 1st

    Research 1st Severe ME, POTS & MCAS.

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    Can you hear the tapping of shoes running into the distance?

    That's BPS theory of CFS running away from the scene of the crime.

    Tens of millions of people with ME (via CFS) are blamed for their condition in Western countries, of which only a small percentage are mentally ill. Infact, PACE even failed to show that as PACE wasn't G93.3 (CFS ME) but F48.0.

    What happened to the patients with progressive fatal ME who weren't mentally ill?
    What happened to the patients who became mentally ill and committed suicide, due to the Iatrogenic neglect?


    The patients died due to lack of treatment, due to lack of funding, because government agencies refused to help and went with the cheap option - blame the victim of disease.

    CBT GET, a health policy sold to the Western world as cheap, safe, and effective to 'manage' autoimmune autonomic (novel inflammatory) disease.

    WHAT COULD POSSIBLY GO WRONG?
     
    alex3619 likes this.

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