Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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An open letter to Psychological Medicine, again! by D Tuller et al

Discussion in 'General ME/CFS News' started by Yogi, Mar 23, 2017.

  1. Yogi

    Yogi Senior Member

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  2. user9876

    user9876 Senior Member

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    Murray was always likely to ignore the letter. He has ignored reports of factual errors in the paper and has refused to investigate - I suspect against the publishers own policies.

    He wrote a very supportive (of PACE) editorial when patient letters were published basically dismissing them as harassment.
    And he is a colleague of Wessely.

    Unless Cambridge university press do something because it will harm their reputation I cannot see anything happening from the journal. Perhaps the other editor will start to worry about his reputation.

    I think we should have a campaign to remove Murray's knighthood as he is acting unethically and increasing the chances that patients will be harmed by a treatment with no benefits and potential side effects.
     
    Jill, ladycatlover, Izola and 13 others like this.
  3. Snow Leopard

    Snow Leopard Hibernating

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    Murray writes a non-answer. Doesn't try to defend the indefensible, just ignores it completely. :mad:
     
    MEMum, Mesurfer, Barry53 and 8 others like this.
  4. Esther12

    Esther12 Senior Member

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    Does anyone know how to go about putting on pressure here? Probably something that needs to be done cautiously? Any academics in the house?
     
    mango, Jan and A.B. like this.
  5. trishrhymes

    trishrhymes Senior Member

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    Could a copy of the correspondence be sent to the bosses of the publisher?
     
    MEMum and Jan like this.
  6. Jonathan Edwards

    Jonathan Edwards "Gibberish"

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  7. Dolphin

    Dolphin Senior Member

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    Ritto, ladycatlover, MEMum and 7 others like this.
  8. Jan

    Jan Senior Member

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    Can't quite believe this

    '17 added individuals and 23 more organizations, for a total of 141 signatories altogether. These include two lawyers from Queen Mary University of London, the academic home of lead PACE investigator Peter White'

    A barrister from QMUL

    Robin Callender Smith, PhD
    Professor of Media Law
    Centre for Commercial Law Studies
    Queen Mary University of London.
    Barrister and Information Rights Judge
    London, UK
     
  9. Tom Kindlon

    Tom Kindlon Senior Member

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    ladycatlover, Marky90, Sean and 19 others like this.
  10. Yogi

    Yogi Senior Member

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    Too late!!!!!

    Please do not allow INACTION For Me to sign @Tom Kindlon

    There is absolutely no need for a fake charity when we have 140 great signatures.
     
    ladycatlover, Barry53, moosie and 3 others like this.
  11. charles shepherd

    charles shepherd Senior Member

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    This is starting to feel like a 'banging your head against a brick wall' situation

    I think it may be time to see if Cambridge University Press is willing to accept that this is a serious matter of concern

    I have just sent this to the Countess of Mar

    CS
     
  12. slysaint

    slysaint Senior Member

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    according to EC there are only about 50-100 people who are 'the trouble makers'............:wide-eyed:
     
  13. Esther12

    Esther12 Senior Member

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    Good to get them to sign imo. It won't make up for all the problems they've caused, but as they were the patient group involved in helping run PACE them calling for retraction would be of some significance. It would also make it harder for them to downplay the problems with PACE in the future.
     
    ladycatlover, MEMum, Orla and 10 others like this.
  14. A.B.

    A.B. Senior Member

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    We do want to see Action for ME on our side. They're now the only thing left that lets the BPS proponents claim to have patient support.

    Of course if they self destruct due to conflicts of interest I would not shed a tear. Conflicts of interest, or whatever the source of their hypocrisy is.
     
    ladycatlover, Binkie4, MEMum and 11 others like this.
  15. sarah darwins

    sarah darwins I told you I was ill

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    Wow. That, er, 'response' by Murray ... he's managed to get a whole world of ignorant, passive-aggressive, patronising hauteur into a single three-sentence paragraph. That's quite an achievement — no wonder he's a 'Sir'.
     
    ljimbo423, MEMum, Orla and 21 others like this.
  16. Yogi

    Yogi Senior Member

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    ..This is starting to feel?? I think it has been like this for nearly a decade!
     
    Wolfiness, Mel9, Countrygirl and 4 others like this.
  17. Solstice

    Solstice Senior Member

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    Keeping pressure up on them would be very good. Alas I don't have twitter, but keeping on reminding them about signing the letter through twitter and other sources would be nice. It's time to show your true colours, not just to us who already know them, but to your members aswell. Do you want to go down with PACE or do you want to continue on the other side. Keeping on reminding them will show them we won't forget.
     
  18. Jonathan Edwards

    Jonathan Edwards "Gibberish"

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    I am beginning to see things a little differently. Like the last scene in the drawing room when all Agatha Christie's suspects are gathered together wondering who did it, and how many of them, and how, and why. And Miss Marple begins to explain about who lied to protect someone who did not actually do it and so on and so on. And you know that there is no going back. A few red hands and a lot of red faces.

    Anyone who can think of another lever to pull at Cambridge University Press please go for it, but I suspect there is no rush. It is apparent that the truth is apparent to enough people. Maybe it's like banging your head against a wall that is already leaning dangerously down the hill and making cracking noises!
     
  19. lilpink

    lilpink Senior Member

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    Would that be Denmark Hill then? ;)
     
    Last edited: Mar 23, 2017
  20. char47

    char47 Senior Member

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    Wonderful to have the 2 Law professionals from QMUL on there & also particularly great to have so many psychs signing too.... Which rather demolishes the argument that 'the only doctors who oppose PACE & the theories behind it are ones who don't understand the finer points of psychological research/theory etc'.

    Do you really think so Jonathan? Oh i do hope so, i keep telling myself not to get my hopes up but hearing you say that is so encouraging.
     

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