The 12th Invest in ME Research Conference June, 2017, Part 2
MEMum presents the second article in a series of three about the recent 12th Invest In ME International Conference (IIMEC12) in London.
Discuss the article on the Forums.

An Investigation into the Relationship Between ME(CFS) and Obsessive-Compulsive Disorder

Discussion in 'Latest ME/CFS Research' started by worldbackwards, Dec 2, 2015.

  1. worldbackwards

    worldbackwards A unique snowflake

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    https://glyndwr.eu.qualtrics.com/jfe/form/SV_20qphvofps5v37f
    Lucky us, having a undergraduate student let loose on a sensitive and easily misread area of medicine. What could possibly go wrong?
     
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  2. JPV

    JPV ɹǝqɯǝɯ ɹoıuǝs

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    MEMum and Art Vandelay like this.
  3. RustyJ

    RustyJ Contaminated Cell Line 'RustyJ'

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    This study appears to be supported by MEA and A4ME.
     
  4. TiredSam

    TiredSam The wise nematode hibernates

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    This psychology student must have been asleep in the OCD lecture, because the way she writes about it in the above excerpt shows she doesn't really have a clue about it.

    If she's really interested in M.E. a good first step would be to change courses from psychology to medicine, then specialise in immunology or neurology.
     
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  5. Richard7

    Richard7 Senior Member

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    "everybody has OCD"

    presumably this is like everybody gets fatigue, or a bit down or ...

    I know that when I studied chemistry we were told that nobody who was not considered safe alone in the lab would pass second year, maybe we need something similar for psychology students.
     
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  6. worldbackwards

    worldbackwards A unique snowflake

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    I'd draw attention to this quote:
    Now, as an ME patient who has been (and remains to an extent) severely affected, I learned to do things at certain times of the day for certain periods of time, in order to get symptoms under control: it was a method of management in order to stop me doing things which made me more ill and had to be enforced pretty sharply in order to do so.

    Now that I'm a bit better I get rid of it whenever I can (which isn't all that often, but still): it's annoying and stops me doing what I want to do when I want to, but it remains an important tool.

    Reducing techniques to manage a severe illness and avoid highly unpleasant physical and symptomatic consequences to a simple act of potentially inappropriate behaviour is the agenda of everyone who has sought to minimise and obfuscate ME as a severe and disabling illness throughout the years. As such, I fail to see why this is likely to be different.
     
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  7. charles shepherd

    charles shepherd Senior Member

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    Re MEA link:

    We are constantly being approached by university students to help with various aspects of research projects

    We were approached by this psychology student some time ago

    And while we decided not to endorse the research, or to get involved in any way, we did agree to let her insert contact details of the MEA in case anyone filling in the questionnaire wanted a reliable source of information and support
     
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  8. Snow Leopard

    Snow Leopard Hibernating

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    Who was 'invited' to participate in this study?
     
  9. GhostGum

    GhostGum Senior Member

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    Quite amazing to think that the unique bacterial makeup of any given individual could essentially determine their behavior and personality characteristics; puts a whole new freaky spin on behavioral science.
     
  10. worldbackwards

    worldbackwards A unique snowflake

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    Is, not was. And anyone. You can do it now if you want! It says "diagnosed ME patients" but an open internet questionnaire seems a strikingly flimsy filter.
     
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  11. sarah darwins

    sarah darwins I told you I was ill

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    I took a look at the start but I'm not sure I want to complete it. Does any part of the survey address whether there has been a change in these things since becoming ill?
     
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  12. worldbackwards

    worldbackwards A unique snowflake

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    Can't face it myself. But theoretically you could do the whole thing and then bail out on the last question and not send it in. Think of science, Sarah ;)
     
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  13. sarah darwins

    sarah darwins I told you I was ill

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    Heh. Okay ... but if I don't make it back I at least want something named after me.
     
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  14. sarah darwins

    sarah darwins I told you I was ill

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    Okay, the answer to my question is No. You get asked a couple of basics, like age and how long since diagnosis, then you get a bunch of standard "how do you feel about" Qs relating to the last month.

    There you go, worldbackwards. Done my bit for science.
     
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  15. TiredSam

    TiredSam The wise nematode hibernates

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    A little bit OCD? The student seems to be confusing the everyday slangy meaning OCD has been given with the life-consuming condition she claims to be studying.

    This couldn't possibly be leading to the conclusion that M.E. patients' stubborn refusal to accept that they have a psychosomatic condition is based on their OCD tendencies could it? I mean it's not as if psychologists have ever had a preconcieved notion about M.E. and then done a "study" to prove it, and if the data doesn't fit, misrepresent it until it does. Even if that isn't the student's intention, some BPS psychoquack will make the link.

    At my CFS self-help group there are 3 psychologists who are vociferous in their condemnation of how some of their colleagues have psychologised our physical illness. In the UK there should be a professional body that is equally disgusted with how some of their members are abusing a whole patient population. In any other profession a group of idiots causing so much damage would have been called to account long ago.

    Until psychologists put their house in order they'll get zero co-operation from me, including filling in their students' online questionnaires.
     
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  16. Snow Leopard

    Snow Leopard Hibernating

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    Ah, what I mean is, how was this survey promoted?
     
  17. worldbackwards

    worldbackwards A unique snowflake

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    The reason I suspect we're not dealing with incisive scientific minds.
    But who could think such a thing?
    Ah, it's its own reward!
    Don't really know, but I saw that on Twitter which I suspect gives us a flavour.
     
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  18. ScottTriGuy

    ScottTriGuy Stop the harm. Start the research and treatment.

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    I was very disturbed when I learned about the effects of taxomplasmosis on human behaviour:

    "For example, Toxoplasma infection alters rat behavior with surgical precision, making them lose their fear of (and even become sexually aroused by!) the smell of cats by hijacking neurochemical pathways in the rat's brain"

    http://blogs.scientificamerican.com...k-side-the-link-between-parasite-and-suicide/

    I wonder if a sign that one has a taxo infection when one is sexually aroused by cats? (pink)
     
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  19. worldbackwards

    worldbackwards A unique snowflake

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    Asking for a friend? :)
     
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  20. ScottTriGuy

    ScottTriGuy Stop the harm. Start the research and treatment.

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    Umm, yeah for a friend, that's right. ;)
     
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