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An insight into some of the views of the CDC's James (Jim) Jones

Discussion in 'General ME/CFS News' started by Dolphin, Jun 24, 2010.

  1. Dolphin

    Dolphin Senior Member

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    This probably won't be that much news to people if they have previously read:

    The video of this education talk for doctors is still available at: http://streaming.biocom.arizona.edu/people/?id=11525
    His flight etc. would have been paid for out of the CDC's CFS budget and he probably gave other doctors. I have been told his specific role at the CDC is physician education
    -----------

    James Jones was a peer reviewer for:
    Chronic fatigue syndrome: Harvey and Wessely's (bio)psychosocial model versus a bio(psychosocial) model based on inflammatory and oxidative and nitrosative stress pathways Michael Maes and Frank NM Twisk. BMC Medicine 2010, 8:35

    One can read his comments at:
    http://www.biomedcentral.com/imedia/1264910103403848_comment.pdf
    and
    http://www.biomedcentral.com/imedia/1675113865366577_comment.pdf

    Appended below are some extracts.


    Review #1:
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    Review #2:

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  2. muffin

    muffin Senior Member

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    USA!
    "...the roles of personality.." Oh let's just blame that damn neurotic patient!

    I think that most CFIDS people actually were very driven and productive pre-CFIDS/ME. Aren't successful, hard working, decent people driven and productive? Isn't that how we raise our children to be? I don't recall my parents telling me to just lay back and take it easy. Did any or YOUR parents tell you to be a lazy slob on the couch? Didn't think so...Not with this crowd of super brights and super talented types on this forum.
     
  3. Dolphin

    Dolphin Senior Member

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    Also:
    is a bit of a joke.
    There isn't evidence that I recall on the first item.

    Basically you have to do exactly the right amount, even though of course it can be hard to tell from day to day how much energy one has used especially when you consider that as well as for physical activity, your body may use energy to keep you a certain temperature, for being upright vs seated vs horizontal (and all the angles), cognitive energy used, energy used for emotional issues that might arise, dealing with infections you might be exposed to and other antigens, etc. Your body may not have recovered from activities from previous days. Your sleep quality can vary from day-to-day.

    Then of course one could be on course at 6pm say and then something out of the blue happens and you wish you hadn't used us up so much energy earlier.

    Do too little and you're making yourself or keeping yourself deconditioned; but if you to do too much, it's "periodic relative overactivity".
     
  4. Sean

    Sean Senior Member

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    Stopped reading at that point. Useless hack.

    [Shakes head, walks away...]
     
  5. lancelot

    lancelot Senior Member

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    southern california
    James Jones you're a HACK!!! You have done no good, helped no one and helped hurt millions! How can you keep living in Reeve's charade?
     
  6. acer2000

    acer2000 Senior Member

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    This paper is written as such that anyone with a real illness would be excluded from their definition and thus not respond to their proposed treatment (CBT + GET). So yeah, if you move the goal posts enough to only include patients with (CBT+GET) responsive illness then I guess it makes sense. But that just means they are ignoring the majority of other patients who are ill with symptoms of CFS and don't have hypothyroid, autoimmune, etc... but don't fit their study group. So what about those people, eh CDC? Why are they sick?

    I guarantee you that if XMRV turns out to cause "CFS" symptoms they will say "oh yeah, well of course those people had XMRV - therefore they didn't have CFS and wouldn't be expected to respond to our psych treatments". Cop-out central.

    I'd love it if GET and CBT would make me better. They are free and easy. Unfortunately, they didn't.
     

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