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An Advocate for my Medical for my ME/CFS - Dilemma

Discussion in 'General ME/CFS Discussion' started by Jennifer J, Nov 16, 2015.

  1. Jennifer J

    Jennifer J Senior Member

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    Southern California
    Hi, Everyone.

    I posted again on Craigslist for a Medical Advocate in the volunteer section. Third time may be a charm.:) Someone responded!

    Here's the dilemma, I mostly need someone's help regarding my ME/CFS and my chemical sensitivities. Because of the disbelief from many that comes with this illness, I need help navigating communication, education and getting things I need.

    What should I point her to regarding ME/CFS and the history, prejudice, complications, seriousness, etc.?
    I thought I could send her a link to PR, yet I'm not sure what she'll read and how much.

    Is there something else anyone would recommend, a site or well written piece about this that wouldn't be too long, as an introduction for her, to see if she'll want to help me or run for the hills?

    Thank you for your help. (Heart emoticons.)
     
    Last edited: Nov 16, 2015
  2. *GG*

    *GG* Senior Member

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    Concord, NH
    Sorry, I have no feedback on this, but wonder what your ad reads like. Sounds creative!

    GG

    Maybe post the link? Be safe though!
     
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  3. ahmo

    ahmo Senior Member

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    Northcoast NSW, Australia
    Check out @JaimeS blogs. She's written a short and a longer version descriptions of ME, including myths. it might be perfect for you. good luck.
     
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  4. SickOfSickness

    SickOfSickness Senior Member

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    I hope she works out!
     
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  5. Jennifer J

    Jennifer J Senior Member

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    Southern California
    Thank you everyone for your replies.:)

    Thank you, @ggingues. A Seinfeld episode gave me the idea!:) Kramer got an intern from NYU to help him with his day to day stuff. I was jokingly thinking I need that. Then I thought why not and maybe I can find someone who wants to advocate for me.

    I don't really want to post the link for privacy reasons. Basically I say something nice about me, that I have a medical condition/autoimmune or something without saying ME/CFS, that my energy is limited and I need help, and say something about why they might enjoy doing this or how it might be beneficial for them (because I'm on a fixed income and couldn't compensate them financially).

    Yes, CL is risky. Have to be careful.


    Thank you, @ahmo for pointing me to her blog. I did peruse it. I will check it out further. I really appreciate all the work she put into that. Thank you @JaimeS!


    Thank you, @SickOfSickness.:) She sounds promising. We'll see. I've been to crashed so far have only done a couple emails back and forth. Fingers crossed.
     

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