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An Acceptance and Commitment Therapy (ACT) intervention for Chronic Fatigue Syndrome (CFS)

Discussion in 'Latest ME/CFS Research' started by Dolphin, May 4, 2017.

  1. Dolphin

    Dolphin Senior Member

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    http://www.sciencedirect.com/science/article/pii/S2212144717300315

     
    MEMum, Valentijn, Tyto alba and 2 others like this.
  2. Dolphin

    Dolphin Senior Member

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    Valentijn and Esther12 like this.
  3. trishrhymes

    trishrhymes Senior Member

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    I continue to be amazed that such tiny studies get published. Surely this is no more than a pre-pilot study if there is such a thing.

    At least the author admits the results were mixed and generally not sustained.

    I hate to be cynical, but it looks from the abstract like it could be little more than an exercise in teaching people how to fill in questionnaires to please the experimenter.

    And, though I commend the use of actometers, with a fluctuating condition, one would expect on average half the group to walk a bit more, and half not to after the intervention...

    With a long term condition, treating 6 people for 6 weeks is negligible. Certainly not the basis on which any reliable conclusions can be drawn.

    But I admit I've only read the abstract.

    Can you really get a PhD for so little 'work'?

    Edit to add. I've just looked at the other thread on this, and realise I commented there too. I really must stop going on about stuff that annoys me! I thought it seemed familiar.
     
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  4. Dolphin

    Dolphin Senior Member

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    I really don't know much about Acceptance and Commitment therapy so I'm not the best person to give a detailed review of this paper but will post my observations for what they are worth.
     
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  5. Dolphin

    Dolphin Senior Member

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    Second paragraph is annoying:
     
  6. Dolphin

    Dolphin Senior Member

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    I don't believe this paper mentions a single biological finding. This can lead to a skewed view of the illness as something solely caused by beliefs and behaviours.
     
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  7. Dolphin

    Dolphin Senior Member

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    It is better than nothing that they mentioned concerns. But it is frustrating how they cite long-term study which actually found no long-term benefit for CBT and GET: the control group had similar results.
     
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  8. Dolphin

    Dolphin Senior Member

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    As I say I don't know too much about this. But persisting when you have symptoms with ME rather than resting or switching to another activity is not necessarily a good strategy.
     
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  9. Dolphin

    Dolphin Senior Member

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    This seems to suggest that stopping activities to rest or switch activities can cause distress and that this is bad so that if you can encourage people to keep going that reduces distress and hence that is better. This puts distress as the most important outcome rather than controlling whatever is happening biologically that might cause a patient to stop doing what they're doing/what is causing fatigue.
     
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  10. Dolphin

    Dolphin Senior Member

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    Again this seems to be suggesting that patients persist in activities and ignore symptoms.
    This is not necessarily a good strategy in CFS.

    Also the earlier part of this suggests that people may be able to push through to achieve goals and that this is good when the goals could be unrealistic.
     
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  11. Dolphin

    Dolphin Senior Member

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    So is the idea to save money? And is it done by making the patient feel they don't need health services that they are completely in control of the illness and its outcomes, which may not be true.
     
    Last edited: May 5, 2017
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  12. Dolphin

    Dolphin Senior Member

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    Involving the patient may be good but the use of the term "treatment" suggests perhaps the condition can be treated, as opposed to being managed, by nonpharmacological means.
     
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  13. Dolphin

    Dolphin Senior Member

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    Mindfulness-Mindful Attention Awareness Scale (MAAS)

    http://www.ircimh.org/local/uploads/content/files/ALL COMPLETE PROMIS 10 PROMIS 29 MINDFULNESS CHOICES.docx

     
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  14. Dolphin

    Dolphin Senior Member

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    http://www.ircimh.org/local/uploads/content/files/ALL COMPLETE PROMIS 10 PROMIS 29 MINDFULNESS CHOICES.docx

     
  15. Sean

    Sean Senior Member

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    Patients are ignorant/delusional/stupid/etc, and need an expert to teach us how to manage something the expert clearly has no fucking clue about.

    How is this any different from CBT/GET? Same old shit in another cheap rhetorical suit.

    Plus just six participants. How the hell do you get any statistical robustness with n=6?

    :bang-head::bang-head::bang-head:
     
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  16. Dolphin

    Dolphin Senior Member

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    https://research.gold.ac.uk/8877/1/CFQ-Gillanders et al 2014.pdf
     
  17. Dolphin

    Dolphin Senior Member

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    http://essay.utwente.nl/68632/1/Knirsch, P. - s 10979549 (verslag).pdf

     
  18. NelliePledge

    NelliePledge plodder

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    Cognitive fusion :thumbdown:. Is this a Vulcan mind meld technique to make us think in the approved way.
     
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  19. RogerBlack

    RogerBlack Senior Member

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    I am pondering submitting for publication a case series of one person, studied in depth for 36 weeks on the correlation between the bristol stool scale and fatigue levels.

    I expect it to be similarly valuable to the field.
     
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  20. Woolie

    Woolie Senior Member

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    ACT differs form CBT in that its less "corrective". Rather than identifying and trying to change the person's 'negative thought patterns', the aim is to help people come to terms with the way they feel and with their situation.

    Its generally supportive, and used in a non-judgmental way. In the past, when I have seen it used in health, its does not make the assumption that the person's thoughts and feelings are the cause of the illness.

    Not true here, though, I have to admit.
     
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