Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
Discuss the article on the Forums.

Amyloid Neuropathy?

Discussion in 'Peripheral Neuropathy' started by Francelle, Jun 20, 2010.

  1. Francelle

    Francelle Senior Member

    Messages:
    444
    Likes:
    24
    Victoria, Australia
    How many have been steered onto the 'Amyloidosis' pathway because of your symptoms? Symptoms such as peripheral, motor and autonomic neuropathy can be exhibited in this group!

    Across the board I have found that generally I have been listened to, as well as, extensively tested and believed (except by one Neurologist who suggested a possible somatisation disorder - grrrr). Most though, still don't want to credit my multifareous symptoms with M.E/Fibro but seek to find another more mainstream diagnosis such as Amyloidosis, Scleroderma, Porphyria Etc Etc.

    Is this typical of other's experiences?

    One very wise and insightful specialist said to me last year, that 'In ten years times we will be embarrassed as to our relative ignorance in 2009'. He was wonderfully validating!
     

See more popular forum discussions.

Share This Page