America’s Institute of Medicine says sharing data from clinical trials should “become the norm”

[Dolphin]

[Note: This has nothing to do with the ME/CFS process the IoM is engaged with].

January 14, 2015
America’s Institute of Medicine says sharing data from clinical trials should “become the norm”
http://www.alltrials.net/news/ameri...-from-clinical-trials-should-become-the-norm/

 

[Simon]

AllTrials – America’s Institute of Medicine says sharing data from clinical trials should “become the norm”

A new report from the US’s Institute of Medicine says sharing of data from clinical trials is in the public interest and should be an integral part of carrying out a clinical trial. The report calls on clinical trial funders, pharmaceutical companies, patient groups, ethics committees, journals and professional bodies to make this happen.

The report concludes that challenges to sharing data – privacy concerns and risks of inappropriate analyses – do not outweigh the benefits and are not barriers to sharing, but practical considerations that can be dealt with.

 

[Gingergrrl]

@Dolphin and @Simon Thank you for sharing this and it is great news (if I am understanding it correctly!) This is the philosophy behind the Open Medicine Institute- that info should be shared in order to solve this illness vs. it being a competition between different groups. I think this can only help us in the end.