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AMA sent out newsletter to all members about the new protein study in CFS patients

Discussion in 'General ME/CFS News' started by Nielk, Feb 24, 2011.

  1. Nielk

    Nielk

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  2. SOC

    SOC Senior Member

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    AMA reports medical research to members via popular press articles!? Well, THERE'S your problem....

    As I've been saying for years -- clinical doctors know nothing about research. They don't understand it, they don't read it, they don't interpret it.
     
  3. Nielk

    Nielk

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    No matter why and how, the fact that this is going out to all AMA members is a good thing.
     
  4. Desdinova

    Desdinova Senior Member

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    I agree it is good news that they are sending this out even if the focus was largely on Lyme. And the article didn't feel the need to get someone from the opposition party to rattle off about how Chronic Lyme doesn't exist or some moron to flap their lips and go on about how CFS is a psychosomatic disorder. Wonder how many AMA members subscribe to this? But you've also got to remember that not every Doctor in America is a member of the AMA. None of the three (PCP, Rheumatologist and Sleep Specialist) that I see are members.
     
  5. Hope123

    Hope123 Senior Member

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    I am glad the AMA is sending this out but not sure what the scientific implications of this study will be -- it should be noted that the Lyme study subjects fitted the CDC definition of Lyme disease already with their serologies, had undergone usual antibiotic treatment, and were still sick so this isn't a case of someone with non-CDC diagnosed chronic Lyme as I understand. It does speak to the fact that Lyme disease can become chronic, like West Nile virus sequelae, and not a one-time illness that will always go away with treatment.

    Currently, only about 15-20% of MDs are members of the AMA (although some are not members but still get the journal) and only some opt to get the e-mails. Older docs are more likely to be members than younger docs so at least the older docs, who might be entrenched in their thinking, will be exposed to this information. Younger docs are less likely to join because Gen X/Y are less likely to join groups in general and some interested in groups have been alienated by the AMA's stance on some issues.
     
  6. SOC

    SOC Senior Member

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    Not arguing that point in the least. I agree whole-heartedly that getting good info to clinical doctor is a very good thing.

    I'm just disheartened that rather than reference the actual research (and related research), they reference public media. Given that we're not winning the media battle at the moment, I'm not happy that's what are docs are using to be "informed" about our illness.

    Nevertheless, it is great that they AMA members were given anything as clear about actual scientific evidence as this is.
     

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