Hello, (Sorry that this is so long), I have had ME/CFS for over 4 years since I was 14. At first I pretty much bed bound/sofa bound with some movement around the house. Over time I managed to start going out and at my peak about 3 and a half years ago I was in school part time, went out with friends during the day on Saturday. Since then I had a bit of crash were I pulled out of school and stayed at home, just going out when I dad drove me generally, which could sometimes be quite far, this was about 2 and 3/4 years ago. After a few months I ended up going to school every couple of days or so for an hour and as far as I remember that was pretty much all I was doing, maybe occasionally seeing friends and I think I did walk home from school (about 20 mins). After the school year ended almost two years ago and the next one started I pulled out after about 2 months of going in very part time and I don't think I hardly ever saw friends so I don't thi k I was really going out except when my dad drove me. A couple of months after that I started to develop very bad stomach problems which have been my worse symptom since, this was about Late December/Early January 2011/2012. Since then I have gone from being taken around in the car and walking with my dad and/or mum where ever we went, but not for too long, maybe 30/40 mins, this could be to a place for a walk like a nice area like a field, woods etc or just to the supermarket to get food. But since then my stomach has meant I don't really ever leave the house, at the time I was going out I was doing more but when I crashed with my stomach my symptoms were much worse but now they are more debilitating in terms of I can't walk as much or go out in the car hardly but they are a bit more manageable in the sense when it is bad it isn't quite so severe and my generally nausea isn't as bad, but still very unplesant. I am beginning to notice that just walking around the house or trying to prepare some food or even concentrate on something I feel much worse and my stomach and general nausea amd GI problems are worse which is the overriding worse symptom. Of course I get very tired etc too. So more I more I am realising I think to feel better I need to revert to a bit more like the early days of bed/sofa and requiring more help but it seems odd that I peaked and then got so much worse, or has that happened to any of you? I want to tell my parents that I think I need to be much much more in an almost constant resting state and need more help but I don't know how to say it because it seems like I have just been sliding down for so long and I don't want them to think I am giving up but I would rather feel a bit better and resting in bed each day than trying to do things around the house and feeling unwell. I realise I have written a lot, I am just in a tough situation I think. Any ideas?